Gwen is the mother of Claire and Lola, teenagers with asparagine synthetase deficiency or ASNS. Both Claire and Lola have microcephaly as a result of ASNS. Despite this, they have filled their family and community with love. Finding Happiness and Joy The...
Author Posts: OrangeSocks
Lacey: Tessier Cleft
Tessier Cleft lip gives Christian a very different appearance from other kids but he is a typical 6-year-old that brings his family joy every day.
Kelly and Zac: Achondroplasia
When their son is born with Achondroplasia, Kelly and Zac rely on God for comfort and strength in order to find peace with their new family dynamic.
Kim: CHARGE Syndrome
When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.
Megan and Josh: Apert Syndrome
Josh and Megan learned to embrace their lives with their son who has Apert syndrome. He requires a lot of surgeries but they see him as a complete joy.
Kierra: DiGeorge Syndrome
Evanna was born with DiGeorge syndrome. A 400-day hospital stay wasn’t easy for her parents but it strengthened their marriage and love for their daughter.
Katherine and Jeff: Ellis-Van Creveld syndrome
A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical. Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...
Karen: Down Syndrome
Karen was surprised when her son was born with Down syndrome. She hopes that through her work, the world will be more accepting of those with disabilities.
Lauricia: Cornelia de Lange Syndrome
When her son was born with Cornelia de Lange syndrome, Lauricia relied on family and outside resources for support and to learn about this rare disorder.
Deborah and Kent: Traumatic Brain Injury
Heather suffered a traumatic brain injury as a child which changed the course of her life. Her parents chose to be grateful for the miracles along the way.
Angie: Stromme Syndrome
Angie worried about what her daughter’s life with Stromme syndrome would be like. She has come to learn that the world is full of loving, caring people.
Dawn: Misdiagnosis
Dean was misdiagnosed as being incompatible with life while in utero. His parents are so glad they decided to continue the pregnancy despite scrutiny.
Mandy and Steven: Hydrops Fetalis, Bilateral Renal Agenesis
Mandy is glad she didn’t terminate her pregnancy when her unborn son was diagnosed with Hydrops Fetalis. His short life meant everything to his family.
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