Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors couldn’t give them statistics, because everyone else they knew that received the same diagnosis chose to abort.
Ellis-van Creveld syndrome: Latest Post
Katherine and Jeff: Ellis-Van Creveld Syndrome- Follow Up
Katherine and Jeff have two daughters with Ellis-Van Creveld syndrome- which is considered to be a fatal form of Dwarfism. To everyone's surprise, not only did both girls live after birth, but they are now thriving and, living joy-filled lives- nothing like what...
Ellis-van Creveld syndrome
Katherine and Jeff: Ellis-Van Creveld syndrome
A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical. Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...
