Adrianne and Jason had two biological daughters and an adopted son when they adopted and their daughter Maria from the Philippines. Maria was born missing all 4 limbs, a condition known as Tetra Amelia syndrome. Tetra Amelia syndrome: Exceeding Expectations Adoption...
Adrianne and Jason had two biological daughters and an adopted son when they adopted and their daughter Maria from the Philippines. Maria was born missing all 4 limbs, a condition known as Tetra Amelia syndrome. Tetra Amelia syndrome: Exceeding Expectations Adoption...
Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child.
Having a child with Pfeiffer syndrome comes with it’s challenges. You will discover, however, these kids are just like any other, they just look different.
Gwen is the mother of Claire and Lola, teenagers with asparagine synthetase deficiency or ASNS. Both Claire and Lola have microcephaly as a result of ASNS. Despite this, they have filled their family and community with love. Finding Happiness and Joy The...
Auni lived a short life due to Spinal Muscular Atrophy. Despite this, she made a lasting impact on her parents and all who knew her.
Austin is a six year old boy who has Down syndrome. His parents, Tiffany and TJ, share what a joy he is in their lives and to their families. Tiffany and TJ are heavily involved in their local Down syndrome association which brings awareness and inclusion...
Georgia and Nick first started noticing signs their son Lincoln was regressing developmentally. After getting diagnosed with Autism Spectrum Disorder, they share their joys and struggles coming to terms with his diagnosis. Winning the Lottery “That was the...
Doctors told Stephanie and Andy, their unborn child had anencephaly and wouldn’t make it to birth. Grace impacted many in her 10 hrs and 32 min of life.
Cora and Tray were relieved once their girls were finally diagnosed with Rett syndrome. Now that they had a diagnosis, a game plan could be made.
It took six years for Sandra to receive a diagnosis for her son Tony. He was diagnosed with ADNP syndrome and was the 11th person to be diagnosed. With little information available, Sandra set out to create more awareness for her son’s extremely rare...
Griffin is a young boy with Goldenhar syndrome. He is proud of who he is! His positive attitude helps his parents not view his diagnosis as a bad thing.
Baby Ammon was diagnosed with DiGeorge syndrome and numerous other abnormalities. His parents are grateful he is here despite the difficulties.
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