Author Posts: OrangeSocks

Erick: Down syndrome

Immediately following his daughter’s birth, the doctor told them she suspected their baby girl had Down syndrome.

Daniel: Menkes Disease

After Lucas missed milestones around nine months old, they sought help.  They were told to see a geneticist who thought because of Lucas’ unique hair texture that he had a copper related disorder.  

Brittney and Derik

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.  Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.

Wendy and Matt: Down syndrome

When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, “I think I every emotion known, I was going through. I experienced shock, fear, trauma, devastation, anger. I thought, what did I do? Why me? I was afraid that my life had just been ruined’

Madison and Ty: Expecting a Terminal Baby

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...

TRAK

TRAK is a specialized ranch that helps connect people with animals and their community.  They are located in Tucson Arizona and have been operating for 15 years.  Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK.  Gerald also was able to talk to a few employees as well as a few parents of kids who have benefited from TRAK’s unique program.

Adrianne and Jason: Tetra-Amelia Syndrome

Adrianne and Jason had two biological daughters and an adopted son when they adopted and their daughter Maria from the Philippines. Maria was born missing all 4 limbs, a condition known as Tetra Amelia syndrome. Tetra Amelia syndrome: Exceeding Expectations Adoption...
Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child.

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OrangeSocks

OrangeSocks

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