When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.

When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.
When Kim was 18 weeks pregnant, the doctors discovered some abnormalities with Jackie, her baby. After Jackie was born, it was discovered that she has CHARGE syndrome. Despite enduring six major surgeries before reaching age two, Jackie has brought joy and love to...
When Spencer was less than 24-hours old, he had surgery to fix an issue with his esophagus. It was the beginning of a medical journey that would eventually lead to the diagnosis of CHARGE syndrome. Now at 17 he is attending high school and taking concurrent...