Find Hope with Orange Socks

There are others out there who know exactly how you feel.

Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.

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Stories

Sometimes the best therapy is knowing that someone else has been through it. Watch parent and sibling stories.

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Local & National Resources

Browse resources submitted by loved ones facing similar diagnoses. Or if you have a resource, submit it online!

Erika and Steve- Autism

First signs something was wrong  Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are...

Kristy and Andrew: Pfeiffer Syndrome

utero something was wrong and were candid about their worries and stress.  When Hadley was born all of that changed. 

Mariah: THAP12 Mutation

for good.  She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.

Regan: Goldenhar Syndrome

Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew’s mom, shares her experience with Matthew so far.

Danielle: DDX3X syndrome

Dani and her family fought hard to receive an official diagnosis for her daughter Hayden.  After many specialists they finally received a diagnosis of DDX3X.  So rare that there that at that time there were less than 500 people that have ever been diagnosed with this genetic deletion. 

TRAK

TRAK is a specialized ranch that helps connect people with animals and their community.  They are located in Tucson Arizona and have been operating for 15 years.  Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK.  Gerald also was able to talk to a few employees as well as a few parents of kids who have benefited from TRAK’s unique program.

Regan: Goldenhar Syndrome

Regan: Goldenhar Syndrome

Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew’s mom, shares her experience with Matthew so far.

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