Find Hope
There are others out there who know exactly how you feel.
Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.
Stories
Sometimes the best therapy is knowing that someone else has been through it. Watch parent and sibling stories.
Local & National Resources
Browse resources submitted by loved ones facing similar diagnoses. Or if you have a resource, submit it online!
Wrayanne: Lennox-Gastaut syndrome
Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.
Speech Therapy vs Language Therapy
Communication is a basic skill that provides an avenue for our needs to be met. What happens if your child doesn’t have the language to convey their needs? What happens if your child does have language but the way they talk makes it impossible to understand what they are saying? This is where a speech therapist and language therapist can step in to help!
Importance of Sensory Play
Sensory play is essential for all children during their development. When a child engages in sensory play it stimulates different parts of the brain which strengthens neural pathways in the brain. Sensory play also can help children learn to adapt and deal with unpleasant experiences in their world around them.
Is My Child Ready for Mainstreaming?
Mainstreaming your child with a disability is a big decision. Are they ready? Will they succeed? Each family needs to carefully evaluate their child to determine if mainstreaming is the best option for them
Jess: Bronchopulmonary Dysplasia
Lily was born at 24 weeks gestation weighing only one pound. Lily is a twin and unfortunately, her sister was stillborn. Lily has Bronchopulmonary Dysplasia. Her mom, Jess talks about the grief of losing a child while dealing with the news her daughter had a disability.
Social Media as a Resource
Social media is a platform that allows people from all over the world to connect together. While it can be an incredible tool, oftentimes it can be used as an avenue for bullying and hate. Despite that, there are hundreds of families that have chosen to use social media as a platform to educate and advocate for people with disabilities.
What will you do with your one wild and precious life?
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