Find Hope with Orange Socks

There are others out there who know exactly how you feel.

Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.

Stories Icon

Stories

Sometimes the best therapy is knowing that someone else has been through it. Watch parent and sibling stories.

Local & National Resources Icon

Local & National Resources

Browse resources submitted by loved ones facing similar diagnoses. Or if you have a resource, submit it online!

Regan: Goldenhar Syndrome

Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew’s mom, shares her experience with Matthew so far.

Danielle: DDX3X syndrome

Dani and her family fought hard to receive an official diagnosis for her daughter Hayden.  After many specialists they finally received a diagnosis of DDX3X.  So rare that there that at that time there were less than 500 people that have ever been diagnosed with this genetic deletion. 

Best Buddies

Chances are if you have a child with a disability, you have heard of a program called Best Buddies. While their most common program is creating friendships with people with disabilities and their peers, Best Buddies has several programs geared towards helping people with disabilities all over the world.

Carrie: Gervais syndrome, Cerebral Palsy, Autism, and SCN1A Gene Mutation

Carrie was only 22 years old when she received the unexpected news that her son, Luke, was born with several disabilities. She lived far away from family, and single was single.

Wrayanne: Lennox-Gastaut syndrome

Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.

Regan: Goldenhar Syndrome

Regan: Goldenhar Syndrome

Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew’s mom, shares her experience with Matthew so far.

Danielle: DDX3X syndrome

Danielle: DDX3X syndrome

Dani and her family fought hard to receive an official diagnosis for her daughter Hayden.  After many specialists they finally received a diagnosis of DDX3X.  So rare that there that at that time there were less than 500 people that have ever been diagnosed with this genetic deletion. 

Parents Hoping to Outlive Their Children

Parents Hoping to Outlive Their Children

When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.

Best Buddies

Best Buddies

Chances are if you have a child with a disability, you have heard of a program called Best Buddies. While their most common program is creating friendships with people with disabilities and their peers, Best Buddies has several programs geared towards helping people with disabilities all over the world.

Our website contains links to websites owned and operated by third parties. These links are provided for your information and convenience only and are not an endorsement by Orange Socks. Orange Socks makes no warranties or representations, express or implied about such linked websites, the third parties they are owned and operated by, the information contained on them or the suitability or quality of any of their products or services. Orange Socks accepts no liability for any damage or loss, however caused, in connection with the use of or reliance on any information, material, products or services contained on or accessed through any such linked website.

Orange Socks Store

Friends and Sponsors

Acumen Fiscal Agent Logo
Awesome with Alison picture link
Rise Logo
Direct Care Innovations Logo
StateServ Logo
Collaborative Corner Logo

Pin It on Pinterest