Wrayanne: Lennox-Gastaut syndrome

Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.

Jess: Bronchopulmonary Dysplasia

Lily was born at 24 weeks gestation weighing only one pound. Lily is a twin and unfortunately, her sister was stillborn. Lily has Bronchopulmonary Dysplasia. Her mom, Jess talks about the grief of losing a child while dealing with the news her daughter had a disability.

Jobs for People with Disabilities

Employment opportunities for people with disabilities have grown over the past several years. More companies have become more inclusive to find jobs for people with disabilities.

Dental Health and Disabilities

Children with disabilities are more likely to develop dental issues when compared to their typically developing peers. There are several disabilities that increase the complexity of dental problems as well. Oral health is more important than people realize, taking care of our children’s teeth is a focus of our care that we should be providing.

Prosthetics for Children

Deciding whether or not a prosthetic device is the right option for your child’s limb difference is a big decision. There are many factors to consider when deciding. Ultimately the decision is up to each family and what is best for them.

Find Hope

There are others out there who know exactly how you feel.

Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.

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Stories

Sometimes the best therapy is knowing that someone else has been through it. Watch parent and sibling stories.

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Local & National Resources

Browse resources submitted by loved ones facing similar diagnoses. Or if you have a resource, submit it online!

Wrayanne: Lennox-Gastaut syndrome

Wrayanne: Lennox-Gastaut syndrome

Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.

Jess: Bronchopulmonary Dysplasia

Jess: Bronchopulmonary Dysplasia

Lily was born at 24 weeks gestation weighing only one pound. Lily is a twin and unfortunately, her sister was stillborn. Lily has Bronchopulmonary Dysplasia. Her mom, Jess talks about the grief of losing a child while dealing with the news her daughter had a disability.

Social Media as a Resource

Social Media as a Resource

Social media is a platform that allows people from all over the world to connect together. While it can be an incredible tool, oftentimes it can be used as an avenue for bullying and hate. Despite that, there are hundreds of families that have chosen to use social media as a platform to educate and advocate for people with disabilities.

What will you do with your one wild and precious life?

Orange Socks Stories

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