5 Kids with Special Needs

Rocky admits that at first he had worries and concerns about raising a child with special needs, but these concerns quickly dissolved. He tells us “The joy that comes when you sacrifice for other people and other things…It helps you to focus on the things that really matter in this life and to take joy in the simple things that we often take for granted.”

Twin girls with Cri Du Chat syndrome

Stacy said that her daughters have been a blessing from the beginning but that she had to adjust her thinking to a different path than what she had expected. Now they are just “Sydney and Logan. Stacy tells us, “They are actually easier to raise than my other two daughters who are non-delayed.” Despite the challenges they know it is worth it. “Everyone has problems, you just have to adjust…They are worth it. I wouldn’t give up anything. I love coming home…,” said Terry. He loves that his twin daughters still live at home and he gets about 20 hugs a day from them.

Cathy McMorris Rodgers and Brian Rodgers: Down syndrome

Cathy McMorris Rodgers and her husband Brian Rodgers found out their son Cole had Down syndrome at his birth. “It was tough. The doctors laid out a lot of things and it was very difficult. The fear of the unknown is what is overwhelming in that moment. Go talk to other people, don’t make an isolated decision. Educate yourself, I remember when we go the news about Cole, that so much of it was focused on the negative. It was focused on what health issues he may have or other challenges. Rather than really being told what the potential was.”

A long road for a Lifetime Caregiver, but a full heart

 Jessica is a single mom and the parent of two boys, Britton and Chewy. Britton was born at 28 weeks gestation weighing only two pounds and 14 ounces. He is 13 years old now and has had many health challenges, including a stroke and brain bleed which has resulted in Traumatic Brain Injury (TBI).

Born with 26 fractures: OI- Brittle Bones

They told us they thought he had a form of dwarfism based on his femur length. His femurs are shortened and curved, which is a marker for other conditions. At 32 weeks we got the results back that it was Osteogenesis Imperfecta- also known as brittle bones.

Find Hope

There are others out there who know exactly how you feel.

Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.

Stories

Sometimes the best therapy is knowing that someone else has been through it. Watch parent and sibling stories.

Local & National Resources

Browse resources submitted by loved ones facing similar diagnoses. Or if you have a resource, submit it online!

Ways to Help Create an Orange Socks Movement

We need you to start this movement. To show individuals with special needs they are our equals. We do this by rallying around them until more people include them and lift them in ways that are helpful. Not with pity, but with love.

5 Kids with Special Needs

Rocky admits that at first he had worries and concerns about raising a child with special needs, but these concerns quickly dissolved. He tells us “The joy that comes when you sacrifice for other people and other things…It helps you to focus on the things that really matter in this life and to take joy in the simple things that we often take for granted.”

Twin girls with Cri Du Chat syndrome

Stacy said that her daughters have been a blessing from the beginning but that she had to adjust her thinking to a different path than what she had expected. Now they are just “Sydney and Logan. Stacy tells us, “They are actually easier to raise than my other two daughters who are non-delayed.” Despite the challenges they know it is worth it. “Everyone has problems, you just have to adjust…They are worth it. I wouldn’t give up anything. I love coming home…,” said Terry. He loves that his twin daughters still live at home and he gets about 20 hugs a day from them.

Cathy McMorris Rodgers and Brian Rodgers: Down syndrome

Cathy McMorris Rodgers and her husband Brian Rodgers found out their son Cole had Down syndrome at his birth. “It was tough. The doctors laid out a lot of things and it was very difficult. The fear of the unknown is what is overwhelming in that moment. Go talk to other people, don’t make an isolated decision. Educate yourself, I remember when we go the news about Cole, that so much of it was focused on the negative. It was focused on what health issues he may have or other challenges. Rather than really being told what the potential was.”

What will you do with your one wild and precious life?

Orange Socks Stories

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