A long road for a Lifetime Caregiver, but a full heart

 Jessica is a single mom and the parent of two boys, Britton and Chewy. Britton was born at 28 weeks gestation weighing only two pounds and 14 ounces. He is 13 years old now and has had many health challenges, including a stroke and brain bleed which has resulted in Traumatic Brain Injury (TBI).

Born with 26 fractures: OI- Brittle Bones

They told us they thought he had a form of dwarfism based on his femur length. His femurs are shortened and curved, which is a marker for other conditions. At 32 weeks we got the results back that it was Osteogenesis Imperfecta- also known as brittle bones.

Natalie: Rett syndrome and facial differences

“I held her and I cried and the nurse held me and from that moment on I said “I don’t care about anything else other than protecting her and doing whatever it takes to keep her happy and safe and loved.”

Adrianne and Jason: Tetra-Amelia Syndrome

Adrianne and Jason had two biological daughters when they adopted their son and then their third daughter Maria from the Philippines. Maria was born missing all 4 limbs, a condition known as Tetra Amelia syndrome.   Adrianne and Jason had no experience with someone...

Jori and Dan: Autosomal Recessive Centronuclear Myopathy

When Luxton was born, he wasn't breathing, and doctors immediately called a code blue.  An MRI showed brain bleeds, but doctors didn't know why. Jori and Dan were sent home to care for Luxton. At 3 weeks old, Luxton's oxygen and heart rate plummeted, so they rushed...

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Born with 26 fractures: OI- Brittle Bones

They told us they thought he had a form of dwarfism based on his femur length. His femurs are shortened and curved, which is a marker for other conditions. At 32 weeks we got the results back that it was Osteogenesis Imperfecta- also known as brittle bones.

Jori and Dan: Autosomal Recessive Centronuclear Myopathy

When Luxton was born, he wasn't breathing, and doctors immediately called a code blue.  An MRI showed brain bleeds, but doctors didn't know why. Jori and Dan were sent home to care for Luxton. At 3 weeks old, Luxton's oxygen and heart rate plummeted, so they rushed...

What will you do with your one wild and precious life?

Orange Socks Stories

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