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There are others out there who know exactly how you feel.
Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone.
Stories
Sometimes the best therapy is knowing that someone else has been through it. Watch parent and sibling stories.
Local & National Resources
Browse resources submitted by loved ones facing similar diagnoses. Or if you have a resource, submit it online!
Recent Stories
Katherine and Jeff: 2 with a fatal form of Dwarfism
Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors couldn’t give them statistics, because everyone else they knew that received the same diagnosis chose to abort.
Sarah and Jeremy: Down syndrome adoption
While looking through adoption files from an orphanage in Yerevan Armenia, Sarah saw a picture of Maria, who has Down syndrome. Sarah told us, ” I saw Maria’s face, and I had seen many other faces over the years, and they are always just so cute and you want to adopt them all, but something was very different when I saw Maria’s face. It’s like God told me, “that’s your daughter, go get her!”
Morgan and Rikki- Nono Gene Deletion and a heart defect
When Landon was born his parents had no idea he had any complications, not even an inkling that anything would be wrong. When he was 6 weeks old, he was life-flighted, and they were told that he had only a 75% chance to live. Doctors said that if he made it, they...
A Sister’s Insights on a Child with Down Syndrome
Priceless Children with Down Syndrome Corinne’s younger sister has Down Syndrome. Her perspective on children with Down Syndrome is something that everyone can learn from. Her love for her sister is inspiring because Corinne values her as much as she values anyone...
Tamara and Matthew: Down syndrome follow up 1 year later
About a year ago we interviewed Tamara and Matthew. Tamara was pregnant with their first child, and they had just found out that he had a 90% chance of having Down syndrome. That child, a son they named Greyson, is now 15 months old, and he was born Down syndrome....
Jennifer and James: Adoption of 4 Children with Special Needs
Listen to the Podcast Interview Internationally Adopted Children with Special Needs Jennifer and James did not plan on adopting four children with disabilities, but the call to do so came from within. James said, “We didn’t ever...
local and national resources
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