All Maria wanted was to be able to get the chance to tell Serenity how much she was loved. She said, “I just prayed and I asked God if he could just give me fifteen minutes to love her. To tell her how much I loved her.
Prenatal diagnosis: Latest Post
Maria Update: From a Fatal Diagnosis to Thriving
In this followup interview, Maria shares what life is like with her daughter Serenity, who has been surprising doctors from the minute she was born. Trisomy 18: A Story of Hope The Backstory When we first found Maria, she was close to giving birth. She was...
Rebekah and Chris: Achondroplasia (Dwarfism)
Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child.
Gwen: Asparagine Synthetase Deficiency
Gwen is the mother of Claire and Lola, teenagers with asparagine synthetase deficiency or ASNS. Both Claire and Lola have microcephaly as a result of ASNS. Despite this, they have filled their family and community with love. Finding Happiness and Joy The...
Shortly after Tell was born, he was diagnosed with Syntelencephaly, a rare condition. His family has learned to find joy in their daily challenges.
After finding out her unborn baby had Anencephaly, Summer decided to embrace her time with him by carrying him to term and then donate his organs.
Brittany and Tyler: Hydrocephalus, Encephalocele, Amniotic Band syndrome
Max was born with numerous medical complications involving his heart and brain. His short life brought his parents much joy and peace.
Maria and Brandon: Chromosomal Deletion 9Q
Chase has Chromosomal Deletion 9Q, a rare genetic condition, and a cleft lip and palate. Despite all the unknowns, his parents live each day to the fullest.
Lacey: Tessier Cleft
Tessier Cleft lip gives Christian a very different appearance from other kids but he is a typical 6-year-old that brings his family joy every day.
Kim: CHARGE Syndrome
When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.
Kierra: DiGeorge Syndrome
Evanna was born with DiGeorge syndrome. A 400-day hospital stay wasn’t easy for her parents but it strengthened their marriage and love for their daughter.
Katherine and Jeff: Ellis-Van Creveld syndrome
A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical. Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...