Tessier Cleft lip gives Christian a very different appearance from other kids but he is a typical 6-year-old that brings his family joy every day.
Angie worried about what her daughter’s life with Stromme syndrome would be like. She has come to learn that the world is full of loving, caring people.
When Spencer was less than 24-hours old, he had surgery to fix an issue with his esophagus. It was the beginning of a medical journey that would eventually lead to the diagnosis of CHARGE syndrome. Now at 17 he is attending high school and taking concurrent...