Griffin is a young boy with Goldenhar syndrome. He is proud of who he is! His positive attitude helps his parents not view his diagnosis as a bad thing.
Mason has a long list of medical complexities including a double chromosome deletion. Despite his many medical challenges, he is a light for his family.
When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.
When Spencer was less than 24-hours old, he had surgery to fix an issue with his esophagus. It was the beginning of a medical journey that would eventually lead to the diagnosis of CHARGE syndrome. Now at 17 he is attending high school and taking concurrent...