Griffin is a young boy with Goldenhar syndrome. He is proud of who he is! His positive attitude helps his parents not view his diagnosis as a bad thing.
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Jessica and Johnny: Goldenhar Syndrome
When Jessica was pregnant with Griffin, they discovered a heart abnormality. It wasn't until after he was born they discovered he had several other abnormalities. Despite these challenges, Griffin is a rock star and has proven to his family and others he is...
Kaitlin: Chromosome Deletion
Mason has a long list of medical complexities including a double chromosome deletion. Despite his many medical challenges, he is a light for his family.
Kim: CHARGE Syndrome
When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.
Sariah and David: CHARGE Syndrome
When Spencer was less than 24-hours old, he had surgery to fix an issue with his esophagus. It was the beginning of a medical journey that would eventually lead to the diagnosis of CHARGE syndrome. Now at 17 he is attending high school and taking concurrent...