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Jessica and Johnny: Goldenhar Syndrome

Jessica and Johnny: Goldenhar Syndrome

Griffin is a young boy with Goldenhar syndrome. He is proud of who he is! His positive attitude helps his parents not view his diagnosis as a bad thing.

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Sariah and David: CHARGE Syndrome

Sariah and David: CHARGE Syndrome

When Spencer was less than 24-hours old, he had surgery to fix an issue with his esophagus.  It was the beginning of a medical journey that would eventually lead to the diagnosis of CHARGE syndrome. Now at 17 he is attending high school and taking concurrent...

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