Limb Difference: Latest Post

Adrianne and Jason: Tetra-Amelia Syndrome

Adrianne and Jason: Tetra-Amelia Syndrome

Adrianne and Jason had two biological daughters and an adopted son when they adopted and their daughter Maria from the Philippines. Maria was born missing all 4 limbs, a condition known as Tetra Amelia syndrome. Tetra Amelia syndrome: Exceeding Expectations Adoption After a rough second pregnancy Adrianne and Jason decided they wanted to adopt to...

Limb Difference

Katherine and Jeff: Ellis-Van Creveld syndrome

Katherine and Jeff: Ellis-Van Creveld syndrome

A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical.  Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...

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