Josh and Megan learned to embrace their lives with their son who has Apert syndrome. He requires a lot of surgeries but they see him as a complete joy.
Syndactyly: Latest Post
Megan and Josh: Apert Syndrome
Megan and Josh weren’t expecting their son Edison to have Apert syndrome or hydrocephalus. Now at three-years-old, Edison has brought continuous joy into their lives. He has endured numerous surgeries and has many more in his future. Megan and Josh were...
Syndactyly
Katherine and Jeff: Ellis-Van Creveld syndrome
A routine prenatal ultrasound showed Katherine’s baby had shorter limbs than was typical. Baby Arabella was misdiagnosed with fatal disorders twice while in utero. Katherine and Jeff refused to terminate the pregnancy. It wasn’t until she was born that they got...
