It took six years for Sandra to receive a diagnosis for her son Tony. He was diagnosed with ADNP syndrome and was the 11th person to be diagnosed. With little information available, Sandra set out to create more awareness for her son’s extremely rare disability. Ten years later, she has helped find a genetic file marker for...
It took six years for Sandra to receive a diagnosis for her son Tony. He was diagnosed with ADNP syndrome and was the 11th person to be diagnosed. With little information available, Sandra set out to create more awareness for her son’s extremely rare...
Roland was diagnosed with ADNP syndrome at age four. Since then, his parents have spent their time researching ADNP syndrome and helping other parents too.
At the time of his diagnosis, Parker was the 85th case person to be diagnosed with ADNP syndrome. He has a rare genetic condition that can cause a variety of different abnormalities. Kayla and Josh talked about their journey towards finding a diagnosis and what life...
