utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed.
Kristy and Andrew: Pfeiffer Syndrome
read more
Author Posts: Orange Socks
Kristy and Andrew: Pfeiffer Syndrome
utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed.
Expectations for Your First Occupational Therapy Visit
Lacey OTR/L, an occupational therapist at Roots Therapy in Park City, UT shared some insights on what to expect before the first visit, during the first visit, and what to expect during subsequent sessions. She also shared what makes therapy successful for parents and kids.
Mariah: THAP12 Mutation
for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.
Regan: Goldenhar Syndrome
Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew’s mom, shares her experience with Matthew so far.
Danielle: DDX3X syndrome
Dani and her family fought hard to receive an official diagnosis for her daughter Hayden. After many specialists they finally received a diagnosis of DDX3X. So rare that there that at that time there were less than 500 people that have ever been diagnosed with this genetic deletion.
Parents Hoping to Outlive Their Children
When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.
Glass Children: The Overlooked Siblings of the People We Treat.
We work with children, adolescents, and adults with chronic conditions: mental illness, medical conditions, intellectual or developmental disabilities. We do the very best we can to treat the patient, but what about their siblings? What about them?
Best Buddies
Chances are if you have a child with a disability, you have heard of a program called Best Buddies. While their most common program is creating friendships with people with disabilities and their peers, Best Buddies has several programs geared towards helping people with disabilities all over the world.
Carrie: Gervais syndrome, Cerebral Palsy, Autism, and SCN1A Gene Mutation
Carrie was only 22 years old when she received the unexpected news that her son, Luke, was born with several disabilities. She lived far away from family, and single was single.
Wrayanne: Lennox-Gastaut syndrome
Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.
Speech Therapy vs Language Therapy
Communication is a basic skill that provides an avenue for our needs to be met. What happens if your child doesn’t have the language to convey their needs? What happens if your child does have language but the way they talk makes it impossible to understand what they are saying? This is where a speech therapist and language therapist can step in to help!
Importance of Sensory Play
Sensory play is essential for all children during their development. When a child engages in sensory play it stimulates different parts of the brain which strengthens neural pathways in the brain. Sensory play also can help children learn to adapt and deal with unpleasant experiences in their world around them.
Orange Socks
Author