Author Posts: Orange Socks

Kristy and Andrew: Pfeiffer Syndrome

utero something was wrong and were candid about their worries and stress.  When Hadley was born all of that changed. 

Danielle: DDX3X syndrome

Danielle: DDX3X syndrome

Dani and her family fought hard to receive an official diagnosis for her daughter Hayden.  After many specialists they finally received a diagnosis of DDX3X.  So rare that there that at that time there were less than 500 people that have ever been diagnosed with this genetic deletion. 

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Parents Hoping to Outlive Their Children

Parents Hoping to Outlive Their Children

When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.

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Best Buddies

Best Buddies

Chances are if you have a child with a disability, you have heard of a program called Best Buddies. While their most common program is creating friendships with people with disabilities and their peers, Best Buddies has several programs geared towards helping people with disabilities all over the world.

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Orange Socks

Orange Socks

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