Author Posts: Orange Socks

BRITTNEY AND DERIK

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.  Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.

read more

BRITTNEY AND DERIK

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.  Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.

Wendy and Matt: Down syndrome

When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, “I think I every emotion known, I was going through. I experienced shock, fear, trauma, devastation, anger. I thought, what did I do? Why me? I was afraid that my life had just been ruined’

Madison and Ty: Expecting a Terminal Baby

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...

TRAK

TRAK is a specialized ranch that helps connect people with animals and their community.  They are located in Tucson Arizona and have been operating for 15 years.  Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK.  Gerald also was able to talk to a few employees as well as a few parents of kids who have benefited from TRAK’s unique program.

BRITTNEY AND DERIK

BRITTNEY AND DERIK

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.  Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.

read more
Wendy and Matt: Down syndrome

Wendy and Matt: Down syndrome

When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, “I think I every emotion known, I was going through. I experienced shock, fear, trauma, devastation, anger. I thought, what did I do? Why me? I was afraid that my life had just been ruined’

read more

TRAK

TRAK is a specialized ranch that helps connect people with animals and their community.  They are located in Tucson Arizona and have been operating for 15 years.  Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK.  Gerald also was able to talk to a few employees as well as a few parents of kids who have benefited from TRAK’s unique program.

read more
Erika and Steve: Autism

Erika and Steve: Autism

First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are playing in one area and he's over to an area...

read more
Danielle: DDX3X syndrome

Danielle: DDX3X syndrome

Dani and her family fought hard to receive an official diagnosis for her daughter Hayden.  After many specialists they finally received a diagnosis of DDX3X.  So rare that there that at that time there were less than 500 people that have ever been diagnosed with this genetic deletion. 

read more
Parents Hoping to Outlive Their Children

Parents Hoping to Outlive Their Children

When we work with patients with adult children at home with IDD, as appropriate, the topic should be broached regarding their plans. We need to educate ourselves on the support services available in our area. Often, parents have no knowledge of existing resources for them and their children. Armed with good information, we can help our patients plan for their children with IDD outliving them and help relieve their anxiety about it.

read more
Orange Socks

Orange Socks

Author

Pin It on Pinterest