Immediately following his daughter’s birth, the doctor told them she suspected their baby girl had Down syndrome.
Erick: Down syndrome
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Author Posts: Orange Socks
Erick: Down syndrome
Immediately following his daughter’s birth, the doctor told them she suspected their baby girl had Down syndrome.
Daniel: Menkes Disease
After Lucas missed milestones around nine months old, they sought help. They were told to see a geneticist who thought because of Lucas’ unique hair texture that he had a copper related disorder.
Brittney and Derik
Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life. Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.
Wendy and Matt: Down syndrome
When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, “I think I every emotion known, I was going through. I experienced shock, fear, trauma, devastation, anger. I thought, what did I do? Why me? I was afraid that my life had just been ruined’
Madison and Ty: Expecting a Terminal Baby
During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...
TRAK
TRAK is a specialized ranch that helps connect people with animals and their community. They are located in Tucson Arizona and have been operating for 15 years. Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK. Gerald also was able to talk to a few employees as well as a few parents of kids who have benefited from TRAK’s unique program.
Rebekah: A Brother with Asperger’s
Erika and Steve: Autism
First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are playing in one area and he's over to an area...
Kristy and Andrew: Pfeiffer Syndrome
utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed.
Expectations for Your First Occupational Therapy Visit
Lacey OTR/L, an occupational therapist at Roots Therapy in Park City, UT shared some insights on what to expect before the first visit, during the first visit, and what to expect during subsequent sessions. She also shared what makes therapy successful for parents and kids.
Mariah: THAP12 Mutation
for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.
Regan: Goldenhar Syndrome
Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew’s mom, shares her experience with Matthew so far.
Orange Socks
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