Georgia and Nick first started noticing signs their son Lincoln was regressing developmentally. After getting diagnosed with Autism Spectrum Disorder, they share their joys and struggles coming to terms with his diagnosis. Winning the Lottery “That was the...
Miriellys and Alex have two children. Their youngest, Aerilyn, was diagnosed with Trisomy 13 or Patau syndrome in utero. They were encouraged to terminate their pregnancy and were given a grim prognosis. They chose not to listen to their doctor and to give Aerilyn a...
It took almost three years to get an official diagnosis for their son, Smith. Beth and Bryce shared their journey to getting a diagnosis of Angelman syndrome and how it has impacted their family. Making Your Heart Grow Long Journey Towards a Diagnosis Unlike several...
Christine knew there was something different about her oldest daughter Skylynn. They first hoped she had a sensory processing disorder. However, at the age of two Skylynn was diagnosed with autism. Christine has spent every day since her diagnosis...
When Laura wasn’t meeting developmental milestones, Keven and Phyllis brought her their pediatrician. They were shocked to learn that she had polymicrogyria. Over the years they realized what an absolute joy to Laura was to have in their...
Jen and John were encouraged by medical professionals to abort Jackson after he was diagnosed with encephalocele. They chose to carry him to term and thrilled they did. Jackson is now a thriving two year old who is proving doctors don't always know best. ...
Kimberly and Bobby wanted to take no chances when they found out they were pregnant with their daughter Kyla. They previously had a child who was stillborn after being diagnosed with Trisomy 13 in utero. After receiving normal test results they thought Kyla was going...
Martin and Camille have four children. Three of which have a seizure disorder. Camille and Martin were pioneers in getting appropriate services for their children. Camille and Martin were candid about first learning about their children’s seizure disorder...
Cindy and Mike were devastated when they learned that their fifth child was going to be born with spina bifida. They were strongly encouraged to terminate the pregnancy. 30 years later they are grateful they didn’t. Evan, their son is happy his parents...
Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys have...
Kecia and Kris were excited for the birth of their third daughter Brie. When she was born, they discovered that she had Down syndrome. The news was difficult for Kecia and Kris to process. 10 years later, they have realized how amazing Down syndrome is. They have...
McKenzie anxiously anticipated the birth of her second child. She hoped this child could serve as a buddy for her first child, Trevor, who has Down syndrome. Unfortunately, she found out that Maely had several abnormalities and would die before, during or after...
Chris and Mindy were expecting their fourth child and went in for a routine ultrasound. Everything seemed great until their doctor called them later that night. He said that their son, Camden, had spina bifida, hydrocephalus, and clubfeet. They were given the option...
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