utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed.
Stories: Latest Post
Kristy and Andrew: Pfeiffer Syndrome
Kristy and Andrew shared their journey with their daughter Hadley, who has Pfeiffer syndrome. They found out in utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed. Pfeiffer Syndrome:...
Stories
Jessie and Nathan: DiGeorge Syndrome
Baby Ammon was diagnosed with DiGeorge syndrome and numerous other abnormalities. His parents are grateful he is here despite the difficulties.
Genie: ADNP Syndrome
Roland was diagnosed with ADNP syndrome at age four. Since then, his parents have spent their time researching ADNP syndrome and helping other parents too.
Gina: Down Syndrome and SMA
Larkin is the only known child to have Down syndrome and SMA, Spinal Muscular Atrophy. Her 12 years of life have been difficult, but worth every minute.
Kaitlin: Chromosome Deletion
Mason has a long list of medical complexities including a double chromosome deletion. Despite his many medical challenges, he is a light for his family.
Kellie: Spastic Quadriplegic Cerebral Palsy
Twins, Kay and Kara, were born with Spastic
Quadriplegic Cerebral Palsy. Their sister, Kellie, shares her experiences of having a sibling with a disability.
Nicole: Single Gene Mutation
Jacob is the first person to ever be diagnosed with a single gene mutation. His parents have learned to live in the moment and love their journey with him.
Ann: Twins with Spastic Quadriplegic Cerebral Palsy
Ann gave birth to beautiful identical girls. When they were only a few hours old, they noticed something might be different with them. They were later diagnosed as having spastic quadriplegic cerebral palsy. Ann shares her journey in fighting for her...
Nikki and Alan: Down Syndrome
When Wil was born with Down syndrome, his father thought his world was over. He has since realized, what a blessing Wil is to family and strangers alike.
Kayla and Josh: ADNP Syndrome
At the time of his diagnosis, Parker was the 85th case person to be diagnosed with ADNP syndrome. He has a rare genetic condition that can cause a variety of different abnormalities. Kayla and Josh talked about their journey towards finding a diagnosis and what life...
Laura and Devin: Down Syndrome
Laura and Devin had only been married for three years when Laura’s youngest sister, Annie, came to live with them. Annie has Down syndrome and was 13 years old when her mother passed away. Laura and Devin share the positive impact Annie has had on their family...
