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Mariah: THAP12 Mutation

Mariah: THAP12 Mutation

for good.  She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.

Stories

Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris: Achondroplasia (Dwarfism)

Rebekah and Chris have Achondroplasia, a form of Dwarfism. They have 2 children, one that has Dwarfism, and one that does not. Rebekah and Chris open up about what it’s like living as a little person, and how they feel now that they have a daughter with the same condition. Rebekah is a great resource to parents who receive a Dwarfism diagnosis for their child.

Nicole and Adam: Spina Bifida

Nicole and Adam: Spina Bifida

Piper is a vivacious little girl with spina bifida.  She surpassed the doctors’ expectations even before she was born in an in utero surgery.   High-Risk Surgery Before She Was Born “I Had a Feeling that Something Wasn’t Right” During her 16 week...

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