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Janalen and Rocky: Prader-Willis Syndrome, Cystic Fibrosis, Adoption, and Down Syndrome

Janalen and Rocky: Prader-Willis Syndrome, Cystic Fibrosis, Adoption, and Down Syndrome

Rocky admits that at first he had worries and concerns about raising a child with special needs, but these concerns quickly dissolved. He tells us “The joy that comes when you sacrifice for other people and other things…It helps you to focus on the things that really matter in this life and to take joy in the simple things that we often take for granted.”

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Sariah and David: CHARGE Syndrome

Sariah and David: CHARGE Syndrome

When Spencer was less than 24-hours old, he had surgery to fix an issue with his esophagus.  It was the beginning of a medical journey that would eventually lead to the diagnosis of CHARGE syndrome. Now at 17 he is attending high school and taking concurrent...

Terah and Brian: Down Syndrome

Terah and Brian: Down Syndrome

After unsuccessfully trying for five years to get pregnant, Terah and Brian turned to in vitro fertilization.  During their second round, they found out Terah was pregnant. An hour after Indy was born, she was diagnosed with Down syndrome.  They were...

Erika: Microcephaly

Erika: Microcephaly

Erika was given a very grim diagnosis when she was six months pregnant.  Her daughter, Erilyn was diagnosed with microcephaly.  She was very pressured to abort Erilyn.  Now eight years later, Erika is grateful she chose life and can see that Erilyn is a...

Shirlene: Down Syndrome

Shirlene: Down Syndrome

Jim is 51 years old and has Down syndrome.  He lives with his mom Shirlene who at the time of his diagnosis had never met anyone with Down syndrome.  At first, she was devastated. She now knows how grateful she is that Jim came into her life. Loving Your...

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