for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.
Diagnosis: Latest Post
Mariah: THAP12 Mutation
Having the only two known cases of a genetic mutation called THAP12, Mariah has used her daughter's condition for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis. THAP12: The Only Two in The...
Diagnosis
Nathan: MPS II
Having a brother with MPS was challenging for Nathan growing up. He is now taking his experiences and helping others who have a sibling with a disability.
Summer: Anencephaly
After finding out her unborn baby had Anencephaly, Summer decided to embrace her time with him by carrying him to term and then donate his organs.
Courtney: Harlequin Ichthyosis
Brenna was born with Harlequin Ichthyosis, a rare skin condition that requires constant care. Her condition teaches that beauty is more than what you see.
Brittany and Tyler: Hydrocephalus, Encephalocele, Amniotic Band syndrome
Max was born with numerous medical complications involving his heart and brain. His short life brought his parents much joy and peace.
Will: Down syndrome and Autism
Will has three older siblings and all of them have a disability. His childhood wasn’t “normal” but his siblings have shaped him into who he is today.
Maria and Brandon: Chromosomal Deletion 9Q
Chase has Chromosomal Deletion 9Q, a rare genetic condition, and a cleft lip and palate. Despite all the unknowns, his parents live each day to the fullest.
Lacey: Tessier Cleft
Tessier Cleft lip gives Christian a very different appearance from other kids but he is a typical 6-year-old that brings his family joy every day.
Kelly and Zac: Achondroplasia
When their son is born with Achondroplasia, Kelly and Zac rely on God for comfort and strength in order to find peace with their new family dynamic.
Kim: CHARGE Syndrome
When Jackie was diagnosed with CHARGE syndrome, her mom was overwhelmed by all of her impairments. Since then, she’s learned to enjoy every day with her.
Megan and Josh: Apert Syndrome
Josh and Megan learned to embrace their lives with their son who has Apert syndrome. He requires a lot of surgeries but they see him as a complete joy.
