Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.
Diagnosis: Latest Post
Wrayanne: Lennox-Gastaut syndrome
Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future. Lennox-Gastaut syndrome Something is wrong It...
Diagnosis
Camille and Martin: Seizure Disorder
Martin and Camille have four children. Three of which have a seizure disorder. Camille and Martin were pioneers in getting appropriate services for their children. Camille and Martin were candid about first learning about their children’s seizure disorder...
Cindy, Mike and Evan: Spina Bifida
Cindy and Mike were devastated when they learned that their fifth child was going to be born with spina bifida. They were strongly encouraged to terminate the pregnancy. 30 years later they are grateful they didn’t. Evan, their son is happy his parents...
Shirell and Danny: Prader-Willi Syndrome
Shirell and Danny have a 15 year old boy named Sam, who has Prader-Willi syndrome. When Sam was first born, Shirell and Danny noticed that he was floppy and looked lifeless, and the doctors discovered his issues right away. For Shirell and Danny the joys have...
Kecia and Kris: 3 Children with Down Syndrome
Kecia and Kris were excited for the birth of their third daughter Brie. When she was born, they discovered that she had Down syndrome. The news was difficult for Kecia and Kris to process. 10 years later, they have realized how amazing Down syndrome is. They have...
McKenzie: Diaphragmatic Hernia, Cystic Hygroma, and Renal Agenesis
McKenzie anxiously anticipated the birth of her second child. She hoped this child could serve as a buddy for her first child, Trevor, who has Down syndrome. Unfortunately, she found out that Maely had several abnormalities and would die before, during or after...
Mindy and Chris: Spina Bifida, Hydrocephalus, and Club Foot
Chris and Mindy were expecting their fourth child and went in for a routine ultrasound. Everything seemed great until their doctor called them later that night. He said that their son, Camden, had spina bifida, hydrocephalus, and clubfeet. They were given the option...
Lisa and Steven: Epilepsy and Developmental Delay
Lisa and Steven have a son named Matt who has Epilepsy and and a developmental delay. When Matt was six, he had his first Grand Mal seizure; his parents took him to the doctor where he was then diagnosed with Epilepsy. Lisa and Steven describe Matt as a loving...
Janeen- A Grandma’s Perspective: Lissencephaly
Janeen is the proud grandparent of Hunter, a 10 year old boy who was diagnosed with lissencephaly. Janeen was candid about her experience with Hunter and the joy he has brought into her life and his family’s life. A Grandma's Love Four-month-old...
Sydney and Darren: Alobar Holoprosencephaly
Sydney and Darren courageously chose life despite being told that their daughter had a fatal condition. Grace was diagnosed with alobar holoprosencephaly. She lived for five and a half hours and greatly impacted those around her. Finding Beauty in...
Amber and Justin: Down Syndrome
Justin and Amber were nervous to welcome their son, Finneas. They learned at an ultrasound that their son would be born with some chromosome disorder. They were told that their son would be a burden and encouraged them to have an abortion. They chose life and are...
