Having a child with Pfeiffer syndrome comes with it’s challenges. You will discover, however, these kids are just like any other, they just look different.
Amanda: Pfeiffer Syndrome
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Author Posts: OrangeSocks
Courtney and John: Autism and Mood Disorder Diagnosis
Courtney and John struggled to parent their daughter who had serious behavioral issues. Once she was diagnosed with autism, things drastically improved.
Katie and Eric: Congenital Nephrotic Syndrome
Emerson was diagnosed with Congenital Nephrotic syndrome as a baby. Life has been anything but normal, but a kidney transplant will change everything.
Lacey: Syntelencephaly
Shortly after Tell was born, he was diagnosed with Syntelencephaly, a rare condition. His family has learned to find joy in their daily challenges.
Jennifer: Down Syndrome
Jennifer’s whole life has been shaped by her sister, Vanessa, who has Down syndrome. She wishes everyone could experience the wonderful life she has had.
Stephanie: Autism
Having a sibling with autism and epilepsy was difficult for Stephanie for many years. However, she loves her brother dearly and is very grateful for him.
Valorie: Cockayne Syndrome
At age 7, Jace was diagnosed with Cockayne syndrome, a rare, fatal disorder. To give him the best life possible, his mother was his strongest advocate.
Nathan: MPS II
Having a brother with MPS was challenging for Nathan growing up. He is now taking his experiences and helping others who have a sibling with a disability.
Summer: Anencephaly
After finding out her unborn baby had Anencephaly, Summer decided to embrace her time with him by carrying him to term and then donate his organs.
Courtney: Harlequin Ichthyosis
Brenna was born with Harlequin Ichthyosis, a rare skin condition that requires constant care. Her condition teaches that beauty is more than what you see.
Brittany and Tyler: Hydrocephalus, Encephalocele, Amniotic Band syndrome
Max was born with numerous medical complications involving his heart and brain. His short life brought his parents much joy and peace.
Will: Down syndrome and Autism
Will has three older siblings and all of them have a disability. His childhood wasn’t “normal” but his siblings have shaped him into who he is today.
Maria and Brandon: Chromosomal Deletion 9Q
Chase has Chromosomal Deletion 9Q, a rare genetic condition, and a cleft lip and palate. Despite all the unknowns, his parents live each day to the fullest.
OrangeSocks
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