At age 7, Jace was diagnosed with Cockayne syndrome, a rare, fatal disorder. To give him the best life possible, his mother was his strongest advocate.
Cockayne syndrome: Latest Post
Valorie: Cockayne Syndrome
Jace was seven years old when he was diagnosed with Cockayne syndrome type one, which is a very rare genetic condition, and is fatal. His mother, Valorie, became his champion and has started a non-profit organization called Team Jace to help other families walking the...
Cockayne syndrome
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