First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are playing in one area and he's over to an area...
Following a car accident that left her with brachial plexus palsy in her right arm, Tiffany Yu realized a group of people were left out of the diversity conversation; people with disabilities. During her senior year at Georgetown she began “Diversability,” a movement...
Jori and Dan have a very unique son named Luxton. He is one of three cases in the world that has autosomal recessive centronuclear myopathy type 5. Luxton however is the only one in the world that has two mutated genes. Autosomal Recessive Centronuclear Myopathy...
When I first conceived of Orange Socks, I honestly had no idea what its impact would be. I knew, or at least I thought I knew, what might be helpful, based my own experience with having a daughter with a developmental disability. However, what I have learned during...
Laurel and Jaron didn't receive a diagnosis for their son, Shane, until he was 4 years old. Shane is diagnosed with 18 P Deletion. 18p Deletion He Started Missing Milestones “We assumed he was like any other kid until he started missing some mile markers. We started...
Both of their daughters were diagnosed in utero with a fatal form of Dwarfism. They chose to continue with the pregnancy, and doctors couldn’t give them statistics, because everyone else they knew that received the same diagnosis chose to abort.
While looking through adoption files from an orphanage in Yerevan Armenia, Sarah saw a picture of Maria, who has Down syndrome. Sarah told us, ” I saw Maria’s face, and I had seen many other faces over the years, and they are always just so cute and you want to adopt them all, but something was very different when I saw Maria’s face. It’s like God told me, “that’s your daughter, go get her!”
There’s only a handful of kids who have been diagnosed with NONO gene deletion. Doctors can’t tell you what your life will be like, Morgan and Rikki can.
There were suspicions in utero that their baby would have Down syndrome, but they didn’t know for sure until he was point. After a lot of study and then ultimately meeting their son with Down syndrome, they have decided Grayson is perfect the way he was born.
Jennifer and James have a very unique family, they have 10 children! 6 of them have been adopted and 4 or those adopted have disabilities. They each have brought love and joy into their family. Internationally Adopted Children with Disabilities The Unexpected...
Typical of that time era, David and his wife were encouraged to place their daughter, Sharmi, who had Down syndrome in a state institution. They chose to keep Sharmi at home. A decision David is grateful for. Sharmi’s sister, Valerie, eventually became her...
Kenai is truly one of a kind. With only a handful of people in the world diagnosed with 7Q deletion, he is paving the way and proving doctors wrong. His parents, Kassy and Darren, share what a joy he’s been to their family and how they are helping him grow...
Piper is a vivacious little girl with spina bifida. She surpassed the doctors’ expectations even before she was born in an in utero surgery. High-Risk Surgery Before She Was Born “I Had a Feeling that Something Wasn’t Right” During her 16 week...
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