During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...
In this episode, Gerald talks with Josh Veach, the co-director for Go Shout Love. A cause-driven for-profit business that raises funds and awareness for families on unique medical journeys. Go Shout Love The Formation of Go Shout Love Go Should Love...
Denise shares how her son, Matt, who is on the autism spectrum inspired her to create two amazing companies that strive to better the lives of people with disabilities.
A nonprofit in Philadelphia, Pennsylvania, Pegasus , “[provides] therapeutic horseback riding programs and equine-assisted activities and therapies for children and adults with physical, developmental, and intellectual disabilities.” Not long ago, I did a...
Katherine has a sister she never knew existed until she was 12 years old. A sister, who is profoundly disabled was placed in an institution as a young child. Katherine reconnected with her and has become her guardian.
Dr. Gerald Nebeker talks about a few adoption agencies that help facilitate international adoptions for children with disabilities. In this podcast you will also hear from Michelle, the CEO of Reece’s Rainbow as well as Kecia and Chris who have adopted two children with Down syndrome from the Ukraine.
We often talk about what we can do for people with disabilities, but what about what they can do for us and those in their community? Volunteering isn’t limited by a person’s disability, and a school district that serves Bergen County in New Jersey has found a way to...
Dr. Gerald Nebeker talks about early intervention services that are available to children with developmental delays and disabilities. Gerald speaks with Kristin who is the director of the Early Intervention program at RISE. She explains who is eligible and...
As soon as the neurologist saw Elie, he knew she had a serious condition and soon after diagnosed Elie with infantile spasms, which is considered a medically catastrophic seizure disorder. “It was heartbreaking,” Eric said. “I remember thinking that I didn’t know what to think. I didn’t know what to expect. It was a whole road that we couldn’t see in front of us.”
I really appreciate the many followers of Orange Socks. One of them sent me an article from the Mirror, a newspaper in England. The headline reads, “Coronavirus: People with Down’s [sic] syndrome could be left to die to ‘save’ medical supplies.” I thought, “how...
Even though the country has a record low employment rate of 2-3 percent, people with disabilities have an unemployment rate of 65 percent. Why is this? In this Podcast Gerald talks about with proper training, coaching, and job matching, people with disabilities...
Jessica and Johnathan were shocked and relieved to receive a diagnosis for their son Trenton. Jessica struggled for years to find a doctor who would help her. Her journey in advocacy led her to start a nonprofit organization called Collaborative Corner for Exceptional Children. A company dedicated to helping parents find resources and become advocates for their children with disabilities.
At times throughout the challenges of raising a child with a disability, it can feel as though we are alone. It's easy to think no one understands. However, although each family's path is unique, there are many who are sharing the same struggles and grief. Instead of...
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