for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.
Stories: Latest Post
Mariah: THAP12 Mutation
Having the only two known cases of a genetic mutation called THAP12, Mariah has used her daughter's condition for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis. THAP12: The Only Two in The...
Stories
Ryann and Chuck: Spina Bifida
Ryann was a foster mom when she got a call about a baby with Spina Bifida who needed a home. She eventually adopted him and has enjoyed the journey.
Mercedes and Andy: Down Syndrome Adoption
After going through some challenging, family experiences, Mercedes and Andy decided to adopt a child with Down syndrome. They are forever grateful they did.
Connie: Cerebral Palsy
Connie has been taking care of her daughter with cerebral palsy, cognitive impairment, and a seizure disorder for 41 years. She finds happiness every day.
Courtney and John: Autism and Mood Disorder Diagnosis
Courtney and John struggled to parent their daughter who had serious behavioral issues. Once she was diagnosed with autism, things drastically improved.
Katie and Eric: Congenital Nephrotic Syndrome
Emerson was diagnosed with Congenital Nephrotic syndrome as a baby. Life has been anything but normal, but a kidney transplant will change everything.
Lacey: Syntelencephaly
Shortly after Tell was born, he was diagnosed with Syntelencephaly, a rare condition. His family has learned to find joy in their daily challenges.
Jennifer: Down Syndrome
Jennifer’s whole life has been shaped by her sister, Vanessa, who has Down syndrome. She wishes everyone could experience the wonderful life she has had.
Stephanie: Autism
Having a sibling with autism and epilepsy was difficult for Stephanie for many years. However, she loves her brother dearly and is very grateful for him.
Valorie: Cockayne Syndrome
At age 7, Jace was diagnosed with Cockayne syndrome, a rare, fatal disorder. To give him the best life possible, his mother was his strongest advocate.
Celeste: Fragile X Syndrome
Tyson has Fragile X syndrome. His diagnosis has made life anything but normal but his family learned to adapt to his needs and still enjoy family time.
