Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life. Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.
Diagnosis: Latest Post
Brittney and Derik
Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life. Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome. SHINE syndrome: Brittney and Derik’s...
Diagnosis
Keeping Children with Exceptional Needs Safe at Home with Child Senior Safety
When you have little ones, the most important step you can take to keep them safe at home is baby-proofing. As inconvenient as electric outlet plugs, cabinet latches, and baby gates can be for adults, these safety measures are musts as babies develop into curious toddlers.
Sock Talk: A Doll Like Me with Amy Jandrisevits
Amy Jandrisevits created A Doll Like Me, so kids with physical differences could love and cherish their very own doll that looked exactly like them. She personally makes each doll by hand, and to date she has raised more than $225,000 to help off set the financial burden for those who could not otherwise afford a doll.
Candace: Down Syndrome
Candace comes from a big family; 11 children to be exact. The youngest child was born with Down syndrome. Candace shares her special relationship with Angelita and how she has impacted her family and life for good.
Sock Talk: Go Shout Love
In this episode, Gerald talks with Josh Veach, the co-director for Go Shout Love. A cause-driven for-profit business that raises funds and awareness for families on unique medical journeys. Go Shout Love The Formation of Go Shout Love Go Should Love...
Denise: Autism and Epilepsy
Denise shares how her son, Matt, who is on the autism spectrum inspired her to create two amazing companies that strive to better the lives of people with disabilities.
Katherine: A Guardian For Her Sister With Profound Disabilities
Katherine has a sister she never knew existed until she was 12 years old. A sister, who is profoundly disabled was placed in an institution as a young child. Katherine reconnected with her and has become her guardian.
Sock Talk: International Adoption for Children with Disabilities
Dr. Gerald Nebeker talks about a few adoption agencies that help facilitate international adoptions for children with disabilities. In this podcast you will also hear from Michelle, the CEO of Reece’s Rainbow as well as Kecia and Chris who have adopted two children with Down syndrome from the Ukraine.
Christie and Eric: Epilepsy, Autism, Mood Disorder, Developmental Disability.
As soon as the neurologist saw Elie, he knew she had a serious condition and soon after diagnosed Elie with infantile spasms, which is considered a medically catastrophic seizure disorder. “It was heartbreaking,” Eric said. “I remember thinking that I didn’t know what to think. I didn’t know what to expect. It was a whole road that we couldn’t see in front of us.”
Jessica and Jonathan: Growth Hormone Deficiency
Jessica and Johnathan were shocked and relieved to receive a diagnosis for their son Trenton. Jessica struggled for years to find a doctor who would help her. Her journey in advocacy led her to start a nonprofit organization called Collaborative Corner for Exceptional Children. A company dedicated to helping parents find resources and become advocates for their children with disabilities.
Maria Update: From a Fatal Diagnosis to Thriving
All Maria wanted was to be able to get the chance to tell Serenity how much she was loved. She said, “I just prayed and I asked God if he could just give me fifteen minutes to love her. To tell her how much I loved her.
