Dec 6, 2018 | Congenital Heart Defect, Dwarfism, Ellis-van Creveld syndrome, Stories
Katherine and Jeff have two daughters with Ellis-Van Creveld syndrome- which is considered to be a fatal form of Dwarfism. To everyone’s surprise, not only did both girls live after birth, but they are now thriving and, living joy-filled lives- nothing...
Apr 11, 2018 | Anencephaly, Stories
Stephanie and Andy were recently married when they found out Stephanie was pregnant. Having planned the pregnancy, they were extremely excited for the arrival of their baby girl. However, Grace was diagnosed with acrania anencephaly, a terminal diagnosis....
Jun 1, 2017 | Chromosome Abnormality, Patau syndrome- Trisomy 13, Snapshot story, Stories
Dawn was pregnant with her third child and everything was going great. All that changed one day at a routine ultrasound appointment. Her doctor said he saw multiple abnormalities and wanted her to come back the following week for an amniocentesis. Dawn and her...
Apr 26, 2017 | Chromosome Abnormality, Congenital Heart Defect, Edwards syndrome- Trisomy 18, Stories
When Maria received the news that her daughter, Serenity Grace, had Trisomy 18 or Edwards syndrome, she was strongly encouraged to abort. Instead Maria moved closer to find better resources that would suit the needs of her delivery. She shared her journey...
