Author Posts: Carrying To Term

How to Tell Family and Friends About a Prenatal Diagnosis

After receiving a prenatal diagnosis of a life-limiting condition, you will be navigating information, decisions, grief, and the inevitable experience of telling your family and friends about the diagnosis and prognosis. The idea of sharing this news and devastating reality with your network of family and friends may seem daunting, and you may not feel fully emotionally prepared for the process.

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Erick: Down syndrome

Immediately following his daughter’s birth, the doctor told them she suspected their baby girl had Down syndrome.

Daniel: Menkes Disease

After Lucas missed milestones around nine months old, they sought help.  They were told to see a geneticist who thought because of Lucas’ unique hair texture that he had a copper related disorder.  

Brittney and Derik

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.  Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.

Wendy and Matt: Down syndrome

When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, “I think I every emotion known, I was going through. I experienced shock, fear, trauma, devastation, anger. I thought, what did I do? Why me? I was afraid that my life had just been ruined’

Madison and Ty: Expecting a Terminal Baby

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that...

TRAK

TRAK is a specialized ranch that helps connect people with animals and their community.  They are located in Tucson Arizona and have been operating for 15 years.  Jill and Scott, the founders of TRAK shared their inspiration for starting TRAK.  Gerald also was able to talk to a few employees as well as a few parents of kids who have benefited from TRAK’s unique program.

How to Tell Family and Friends About a Prenatal Diagnosis

After receiving a prenatal diagnosis of a life-limiting condition, you will be navigating information, decisions, grief, and the inevitable experience of telling your family and friends about the diagnosis and prognosis. The idea of sharing this news and devastating reality with your network of family and friends may seem daunting, and you may not feel fully emotionally prepared for the process.

How to Tell Family and Friends About a Prenatal Diagnosis

How to Tell Family and Friends About a Prenatal Diagnosis

After receiving a prenatal diagnosis of a life-limiting condition, you will be navigating information, decisions, grief, and the inevitable experience of telling your family and friends about the diagnosis and prognosis. The idea of sharing this news and devastating reality with your network of family and friends may seem daunting, and you may not feel fully emotionally prepared for the process.

read more
Neonatal Donation FAQ with IIAM

Neonatal Donation FAQ with IIAM

The experience of receiving a prenatal diagnosis of a life-limiting condition leaves families with many questions and complicated emotions to navigate. A key part of feeling fully-informed and equipped following a diagnosis, throughout pregnancy continuation, and in the bereavement period that follows loss, is having access to the insight and support provided by a multidisciplinary care team of specialists and experts in their field. Each member of a family’s care team serves a unique purpose, and Carrying To Term is here to help shed light on the role of each professional.

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The Choice to Carry To Term: Embracing and Celebrating Your Baby

The Choice to Carry To Term: Embracing and Celebrating Your Baby

There are very real and important practicalities to consider following a prenatal diagnosis of a life-limiting condition and the news that you will lose your baby. You will navigate complicated situations. You will advocate for yourself and your baby. You will work with medical professionals to provide the best care to you and your baby. You will bear the weight of the expectations of real life, relationships, and work.

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Carrying To Term

Carrying To Term

Author

Carrying To Term is a national 501(c)(3) nonprofit organization dedicated to providing non-directive information on pregnancy continuation for prenatal diagnoses of life-limiting conditions. By broadening access to evidence-based resources and compassionate logistical and emotional support, we empower women and families to make fully informed choices as they navigate a deeply personal journey. We also work to equip health care providers with the knowledge and tools they need to clearly communicate carrying to term as an option to their patients, elevate the shared decision-making process, and implement a coordinated care strategy. For more information, please visit www.carryingtoterm.org.

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