May 8, 2018 | Albinism, Anencephaly, Asperger's syndrome, Stories
Alie and Tyler have an extremely unique family. They have three children, all who have different disabilities. Jack has Asperger’s, Amelia was diagnosed with anencephaly and died two days after she was born, and Owen has albinism and is legally...
Apr 11, 2018 | Anencephaly, Stories
Stephanie and Andy were recently married when they found out Stephanie was pregnant. Having planned the pregnancy, they were extremely excited for the arrival of their baby girl. However, Grace was diagnosed with acrania anencephaly, a terminal diagnosis....
Apr 22, 2017 | Chromosome Abnormality, Stories, Trisomy 9
Ethan lived for 93 minutes. He is one of the only babies to be born alive with full Trisomy 9. His parents, Kristin and Chris were offered several times to abort Ethan. They decided to carry to term and are happy they chose life and got to meet...
