May 22, 2018 | Spinal Muscular Atrophy, Stories
Auni had spinal muscular atrophy or SMA. A rare fatal disease that is characterized by progressive loss of muscle. While she only lived for 21 months, her parents remember the joy and happiness she brought to their lives and their community. The Fog Will...
Oct 1, 2017 | Cockayne syndrome, Microcephaly, Stories
Jace was seven years old when he was diagnosed with Cockayne syndrome type one, which is a very rare genetic condition, and is fatal. His mother, Valorie, became his champion and has started a non-profit organization called Team Jace to help other families walking the...
Mar 4, 2017 | Polymicrogyra, Stories
When Laura wasn’t meeting developmental milestones, Keven and Phyllis brought her their pediatrician. They were shocked to learn that she had polymicrogyria. Over the years they realized what an absolute joy to Laura was to have in their...
