After Lucas missed milestones around nine months old, they sought help. They were told to see a geneticist who thought because of Lucas’ unique hair texture that he had a copper related disorder.
Diagnosis: Latest Post
Daniel: Menkes Disease
Daniel and his wife spent 11.5 years of their life devoted to taking care of their son Lucas. Lucas had a very rare condition called Menkes disease. Despite being total care, Lucas brought love, joy and happiness to their family. Menkes syndrome: Daniel's Story...
Diagnosis
Best Buddies
Chances are if you have a child with a disability, you have heard of a program called Best Buddies. While their most common program is creating friendships with people with disabilities and their peers, Best Buddies has several programs geared towards helping people with disabilities all over the world.
Carrie: Gervais syndrome, Cerebral Palsy, Autism, and SCN1A Gene Mutation
Carrie was only 22 years old when she received the unexpected news that her son, Luke, was born with several disabilities. She lived far away from family, and single was single.
Wrayanne: Lennox-Gastaut syndrome
Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.
Jess: Bronchopulmonary Dysplasia
Lily was born at 24 weeks gestation weighing only one pound. Lily is a twin and unfortunately, her sister was stillborn. Lily has Bronchopulmonary Dysplasia. Her mom, Jess talks about the grief of losing a child while dealing with the news her daughter had a disability.
Jobs for People with Disabilities
Employment opportunities for people with disabilities have grown over the past several years. More companies have become more inclusive to find jobs for people with disabilities.
Dental Health and Disabilities
Children with disabilities are more likely to develop dental issues when compared to their typically developing peers. There are several disabilities that increase the complexity of dental problems as well. Oral health is more important than people realize, taking care of our children’s teeth is a focus of our care that we should be providing.
Prosthetics for Children
Deciding whether or not a prosthetic device is the right option for your child’s limb difference is a big decision. There are many factors to consider when deciding. Ultimately the decision is up to each family and what is best for them.
Adaptive Shoes
People come in all different shapes and sizes; this is a well-known fact. For most of us, finding clothing and shoes that fit aren’t an issue. What about those with physical disabilities? Unfortunately, those with physical disabilities have limited options or no options at all.
Assistive Technology
Assistive technology is changing the ways people with disabilities can interact in the world around them. The number of students enrolled in a special education setting is increasing each year. One way educators are helping ensure that each student’s individual needs are met is through technology.
Sock Talk: All About The Special Olympics
In this episode, we dive into the history surrounding the formation of the Special Olympics. We interview Rebecca Ralston, who is the director of the Young Athletes Program of The International Special Olympics.
