Osteogenesis Imperfecta Foundation Oct 29, 2018804 W. Diamond Ave, Suite 210 Gaithersburg, MD 20878 Phone: (301) 947-0083 Toll Free: (844) 889-7579 Email: bonelink@oif.org Website: https://oif.org/
National Organization for Albinism and Hypopigmentation May 20, 2018Facebook: https://www.facebook.com/NOAH.Albinism Twitter: https://twitter.com/NOAHAlbinism Instagram: https://www.instagram.com/NOAHAlbinism/
Personal Stories Nov 2, 2017Ava June and Mommy Too: A Pierre Robin Sequence Story: http://www.facebook.com/AvaJuneandMommytoo/ Charlotte Lousie Taylor- Daisy’s Story: www.youtube.com/watch?v=pHbBXo3C4d4&list=PLoUu0DSv1cu5nHGjk-jXQ1JbpA2J67dcj Raising Arrows:...
