Online Resources Archives

Rare Disease Clinical Research Network

Dec 27, 2021

Phone: 1(888) 205-2311 Email: GARDinfo@nih.gov Website: https://www.rarediseasesnetwork.org/resources-for-patients-and-families

Nov 2, 2021

Website: https://ddx3x.org/ Facebook: https://www.facebook.com/groups/geneddx3x/

Nov 2, 2021

4200 Cantera Dr. #106 Warrenville, IL 60555 Phone: (800) 362-4423 Email: contactus@magicfoundation.org Website: https://www.magicfoundation.org/

Nov 2, 2021

997 Glen Cove Ave, Suite 5 Glen Head, NY 11545 Phone: (800) 451-6434 Email: hgf1@hgfound.org Website: https://www.hgfound.org/

Nov 1, 2021

PO Box 9214 Jackson, WY 83002 Phone: (646) 253-7100 Email: info@smafoundation.org Website: https://smafoundation.org/