Support Groups for CAMK4 mutation Oct 10, 2017Facebook: National Organization for Rare Disorders, Inc. (NORD)
Support Groups Oct 10, 2017Facebook: Parents of Kidney Kids Potter’s Syndrome Forum Bi-Lateral Renal Agenesis (Potters Syndrome)
Support Groups Oct 9, 2017Facebook: Apert International (Apert USA) Apert Syndrome and Syndromic Craniosynostosis Awareness Group Apert, Crouzon, Pfeiffer + All FGFR Cranio syndromes