Support Groups

Facebook: Parents of Kidney Kids Potter’s Syndrome Forum Bi-Lateral Renal Agenesis (Potters Syndrome)  

Support Groups

Facebook: Families with children who have Ataxic Cerebral Palsy

Support Groups

Facebook: Apert International (Apert USA) Apert Syndrome and Syndromic Craniosynostosis Awareness Group Apert, Crouzon, Pfeiffer + All FGFR Cranio syndromes

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