Muscular Dystrophy Association

161 N. Clark, Suite 3550 Chicago, Illinois 60601 Phone: (800) 572-1717 Email: ResourceCenter@mdausa.org Website: https://www.mda.org/

Global Genes

28 Argonaut, Suite 150 Aliso Viejo, CA 92656 Phone: 1(941) 248-7273 Email: careaboutrare@globalgenes.org Website: https://globalgenes.org/

Never Give Up

27 W. Anapamu, Suite 177 Santa Barbara, CA 93101 Phone: (805) 203-0334 Email: info@nevergiveup.org Website: https://nevergiveup.org/

EveryLife Foundation for Rare Diseases

1012 14th Street, NW, Suite 500 Washington, DC 20005 Phone: (202) 697-7273 Contact: Lindsey Email: lcundiff@everylifefoundation.org Website: https://everylifefoundation.org/

Cure SMA

925 Busse Road Elk Grove Village, IL 60007 Phone: (800) 886-1762 Email: info@curesma.org Website: https://www.curesma.org/

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