Mar 19, 2019 | Diagnosis, Stories
Natalie found out during an ultrasound that her daughter would be born with multiple disabilities. She was shocked and only had 4 weeks to prepare for the birth. She has since become a fierce advocate for Sophia and is proving that a disability is nothing...
Mar 23, 2018 | Rett syndrome, Stories
Cora and Trey have identical twin girls. When they were two-years-old, they were both diagnosed with a rare neurological disorder called Rett syndrome. With only eight confirmed cases in the United States, Cora and Trey have become advocates for their daughters. The...
Oct 1, 2017 | Cockayne syndrome, Microcephaly, Stories
Jace was seven years old when he was diagnosed with Cockayne syndrome type one, which is a very rare genetic condition, and is fatal. His mother, Valorie, became his champion and has started a non-profit organization called Team Jace to help other families walking the...
