Natalie: Rett Syndrome and Facial Differences

Natalie: Rett Syndrome and Facial Differences

Natalie found out during an ultrasound  that her daughter would be born with multiple disabilities. She was shocked and only had 4 weeks to prepare for the birth.  She has since become a fierce advocate for Sophia and is proving that a disability is nothing...
Cora and Trey: Rett Syndrome

Cora and Trey: Rett Syndrome

Cora and Trey have identical twin girls.  When they were two-years-old, they were both diagnosed with a rare neurological disorder called Rett syndrome.  With only eight confirmed cases in the United States, Cora and Trey have become advocates for their daughters. The...
Phyllis and Keven: Polymicrogyria

Phyllis and Keven: Polymicrogyria

When Laura wasn’t meeting developmental milestones, Keven and Phyllis brought her their pediatrician.  They were shocked to learn that she had polymicrogyria. Over the years they realized what  an absolute joy to Laura was to have in their...

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