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Alie and Tyler: Asperger’s Syndrome, Anencephaly and Albinism

Alie and Tyler: Asperger’s Syndrome, Anencephaly and Albinism

May 8, 2018 | Albinism, Anencephaly, Asperger's syndrome, Stories

Alie and Tyler have an extremely unique family.  They have three children, all who have different disabilities.  Jack has Asperger’s, Amelia was diagnosed with anencephaly and died two days after she was born, and Owen has albinism and is legally...
Lacey: Syntelencephaly

Lacey: Syntelencephaly

Oct 10, 2017 | Agenesis of Corpus Callosum, Prenatal diagnosis, Stories, Syntelencephaly

Lacey found out at a 28-week ultrasound that one of the twins she was carrying had a problem with his brain. They weren’t able to diagnose syntelencephaly and partial agenesis of the corpus callosum until after the birth of her son, Tell. Taking a Different...

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