Resources Results
University of New Mexico Cleft and Craniofacial Team – CPT
7801 Academy Road NE
Albuquerque, NM 87109-3379
Phone: (505) 272-2302
Contact: Sheree Shaw
Email: slshaw@salud.umn.edu
Website: http://hospitals.unm.edu/children/ccc/index.shtml
Goryeb Children’s Hospital Craniofacial Center – CPT, CFT
100 Madison Avenue # 29
Morristown, NJ 07960-6136
Phone: (973) 971-8585
Contact: Susan Wood
Email: susan.wood@atlantichealth.org
Website: http://www.njcraniofacialcenter.com
Regional Cleft-Craniofacial Program – CPT
Children’s Regional Center
Cooper University Hospital
110 Marter Avenue
Suite 402
Moorestown, NJ 08057-3124
Phone: (856) 722-9110
Contact: Marilyn A. Cohen
Email: cohen-marilyn@cooperhealth.edu
Website: http://www.cooperhealth.org
NJ Institute for Craniofacial Surgery at Barnabas Health Ambulatory Care Center – CPT, CFT
200 South Orange Avenue
Livingston, NJ 07039-5817
Phone: (973) 322-6330
Contact: Randi Schwartz-Zalayet
Email: rschwartzzalayet@barnabashealth.org
Website: http://www.barnabashealth.org
Apert Syndrome
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/apert-syndrome/
Support Groups
Resources & Education – State Resources
Angelman syndrome Foundation: https://www.angelman.org/resources-education/state-resources/
Aicardi Syndrome
Aicardi Syndrome Foundation: https://aicardisyndromefoundation.org/aicardi-syndrome/
Genetics Home Reference: https://ghr.nlm.nih.gov/condition/aicardi-syndrome
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/aicardi-syndrome/
Adult Congenital Heart Disease Program
Arkansas Children’s Hospital
1 Children’s Way
Little Rock, AR 72202
Phone: (501) 364-1479
Director: R. Thomas Collins, ll, MD
Website: http://www.archildrens.org/programs-services/a-to-z-services-list/adult-congenital-heart-disease/adult-congenital-heart-disease
University of California Medical Center
535 Mission Bay Boulevard S
San Francisco, CA 94158
Phone: (415) 353-2873
Director: Ian S. Harris, MD
Website: https://www.ucsfhealth.org/clinics/congenital_heart_disease_clinic/index.html
Sutter Medical Center
2800 L Street
Suite 710
Sacramento, CA 95816
Phone: (916) 887-4242 Ext: 5
Director: Pei-Hsiu Huang, MD
Email: ACHDClinics@sutterhealth.org
Website: http://www.checksutterfirst.org/heartandvascular/conditions/chd.php
Keck Hospital of USC
Healthcare Center II
1520 San Pablo Street
4th Floor
Los Angeles, CA 90033
Phone: (323) 442-7669
Contact: Marcela Correa, MA
Email: marcela.correa@med.usc.edu
Website: http://cvti.keckmedicine.org/
Division of Cardiovascular Diseases
Scripps Green Hospital
1066 N Torrey Pines Road
La Jolla, CA 92037
Phone: (858) 554-8836
Director: Allen D. Johnson, MD
Website: https://www.scripps.org/services/heart-care
Adult Congenital Heart Program
300 Pasteur Drive
3rd Floor
Heart & Vascular Clinic A32
Sanford, CA 94305
Phone: (650) 724-9220
Director: George Lui, MD
Email: mltcarter@stanfordhealthcare.org
Website: https://stanfordhealthcare.org/medical-clinics/adult-congenital-heart-program.html
Kaiser Permanente San Franciso
2238 Geary Boulevard
8th Floor
San Francisco, CA 94115
Phone: (415) 833-2240
Director: Alison Knauth Meadows, MD, PhD
Email: alison.k.meadows@kp.org
Website: https://thrive.kaiserpermanente.org/care-near-you/northern-california/sanfrancisco/departments/cardiac-service-line/#pages-contents
UCLA Cardiovascular Center, Ronald Reagan
100 UCLA Medical Plaza Drive
Suite 630
Los Angeles, CA 90095
Phone: (310) 825-9011
Director: Jamil Aboulhosn, MD, FACC, FSAI
Email: achdc@mednet.ucla.edu
Website: http://heart.ucla.edu/achdc
Cedars-Sinai Medical Center
127 S San Vincente Boulevard
Los Angeles, CA 90048
Phone: (310) 423-1153
Director: Evan M. Zahn, MD
Website: https://www.cedars-sinai.edu/Patients/Programs-and-Services/Heart-Institute/Centers-and-Programs/Congenital-Heart-Disease-Program/
Harbor-UCLA Medical Center
1124 W Carson Street
Torrance, CA 90502
Phone: (310) 222-2515
Director: Priya Pillutla, MD
Email: ppillutla@labiomed.org
Website: http://www.harbor-ucla.org/cardiology/fellowship/interventional-cardiology/
Rady Children’s Hospital
3020 Children’s Way
MC 5004
San Diego, CA 92123
Phone: (858) 966-8888
Director: James C. Perry, MD
Email: ccelis@rchsd.org
Website: https://www.rchsd.org/programs-services/cardiology/
University of California, Davis Ambulatory Clinic
4860 Y Street
Sacramento, CA 95817
Phone: (916) 734-3761
Director: William J. Bommer, MD
Website: http://www.ucdmc.ucdavis.edu/internalmedicine/cardio/index.html
University of Colorado Hospital
12605 E 16th Avenue
Anschutz Inpatient Pavilion 2
3rd Floor
Aurora, CO 80045
Phone: (720) 848-6532
Director: Joseph Kay, MD
Email: joseph.kay@ucdenver.edu
Website: https://www.uchealth.org/locations/uchealth-adult-congenital-heart-disease-anschutz
Connecticut Children’s Medical Center
Cardiology 2B
282 Washington Street
Hartford, CT 06106
Phone: (860) 545-9400
Director: Shailendra Upadhyay, MD, CEPS, FHRS
Email: CTACH@connecticutchildrens.org
Website: https://www.connecticutchildrens.org/search-specialties/cardiology-cardiac-surgery/connecticut-adult-congenital-heart-service/
Yale New Haven Hospital
800 Howard Avenue
New Haven, CT 06520
Phone: (203) 785-2022
Director: John Fahney, MD
Email: ACHD@yale.edu
Website: https://www.ynhh.org/services/congenital-heart-disease.aspx
Children’s National Health System
111 Michigan Avenue Northwest
Washington, DC 20010
Phone: (202) 476-4949
Director: Anitha John, MD, PhD
Email: rphillip@childrensnational.org
Website: https://childrensnational.org/