Resources Results
SBA of Central Florida
100 West Lucerne Circle
Suite 100-M
Orlando, FL 32801
Phone: (407) 248-9210
Contact: Karen Allen
Email: karen.allen@sbacentralflorida.org
Website: http://www.sbacentralflorida.org
Greater San Diego SBA Support Group
PO Box 232272
San Diego, CA 92193-2272
Phone: (619) 491-9018
Contact: Erika Jorquera
Email: sbaofgsd@hotmail.com
Facebook: Spina Bifida Association of California
SBA of California
1600 Wilson Blvd
Suite 800
Arlington, VA 22209
Phone: (800) 621-3141 Ext: 31
Email: blong@sbaa.org
Website: http://www.sbaofca.org
Facebook: Spina Bifida Association of California
SBA of Alabama
PO Box 35
Gadsden, AL 35902
Phone: (256) 617-1414
Email: support@sbaofal.org
Website: http://www.sbaofal.org
Facebook: Spina Bifida Association of Alabama
PWSA of Wisconsin, Inc.
P.O. Box 324
Menasha, WI 54952
Phone: (922) 733-3077
Contact: Crystal Boser
Email: ProgDir@pwsaofwi.org
Website: http://pwsaofwi.org
Facebook: PWSA of WI, Inc.
PWSA of Utah
2652 East Nottingham Way
Salt Lake City, UT 84108
Phone: (801) 582-0998
Contact: Lisa Thornton
Email: lisa.thornton10@gmail.com
Website: http://www.upwsa.org
Facebook: Utah Prader-Willi Syndrome Association
PWSA of Texas
906 West McDermott
Box 116-218
Allen, TX 75013
Phone: (469) 261-2760
Contact: Tom Noonan
Email: tnoonan50@gmail.com
Website: http://txpwa.org
PWSA of Tennessee
Phone: (615) 351-0677
Email: twd1120@gmail.com
Website: http://www.pws-tn.org
Facebook: Tennessee Prader-Willi Association, Inc.
PWSA of Oklahoma
230 West Woodrow Place
Tulsa, OK 74106
Phone: (918) 406-3845
Contact: Gretchen Hannefield
Email: 50gretel@gmail.com
Website: http://www.pwsaok.blogspot.com
PWSA of Ohio
1087 Dover Drive
Medina, OH 44256
Phone: (330) 723-0004
Contact: Stephen Fetsko
Email: pwsaohiosaf@gmail.com
Website: http://pwsaohio.org
PW Alliance of New York, Inc.
244 5th Avenue
Suite D-110
New York, NY 10001
Phone: (800) 442-1655
Contact: Rachel Johnson
Email: raj730@gmail.com
Website: http://www.prader-willi.org
Facebook: Prader-Willi Alliance of NY, Inc.
Ventriculomegaly
The Fetal Treatment Center: https://fetus.ucsf.edu/ventriculomegaly
Support Groups for Ventriculomegaly
Facebook:
Ventriculomegaly
Babies with ventriculomegaly
VACTERL Association
Genetic and Rare Diseases Information Center: https://rarediseases.info.nih.gov/diseases/5443/vacterl-association
Support Groups for VACTERL Association
Support Groups for Turners syndrome
Turner Syndrome
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/turner-syndrome/
Turners Syndrome Society of the United States
Website: http://www.turnersyndrome.org/
Trisomy 9
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/chromosome-9-trisomy-mosaic/
Support Groups for Trisomy 9
The Cleft Foundation
Website: https://www.thecleftfoundation.org/
Support Groups
Facebook:
Tessier Clefts
Tetra-amelia syndrome
Genetics Home Reference: https://ghr.nlm.nih.gov/condition/tetra-amelia-syndrome
Spina Bifida Association
Website: http://spinabifidaassociation.org/