Resources Results
Osteogenesis Imperfecta Clinic
Children’s Hospital of The King’s Daughters
1924 Landstown Centre Way
Virginia Beach, VA 23456
Phone: (757) 668-6640
Contacts: Allison Tenfelde, MD and Eric Gyuricsko, MD
Website: http://www.chkd.org
Osteogenesis Imperfecta Clinic
Shriners Hospital for Children
Fairfax Road at Virginia St.
Salt Lake City, Utah 84103
Phone: (801) 536-3777 Ext: 3
Contact: Nadine Ashley, BSN,RN, ACM
Website: https://www.shrinershospitalsforchildren.org/salt-lake-city
Osteogenesis Imperfecta Clinic
Baylor College of Medicine at Texas Children’s Hospital
6621 Fannin St.
Suite 1560
Houston, TX 77030
Phone: (832) 823-4298
Contact: Brendan Lee, MD
Website: https://www.texaschildrens.org
Osteogenesis Imperfecta Clinic
Vanderbilt University Medical Center
8210 Medical Center East, South Tower
AND
1215 21st Ave South
Nashville, TN 37232
Phone: (615) 343- 8332
Contact: Kathryn Dahir, MD
Website: https://www.vumc.org/main/home
Osteogenesis Imperfecta Clinic
Children’s Hospital at Vanderbilt
2200 Children’s Way
6th Floor, Doctor’s Office Tower
Nashville, TN 37232
Phone: (615) 936-8866
Contact: Jill H. Simmons, MD
Website: https://www.childrenshospitalvanderbilt.org
Osteogenesis Imperfecta Clinic
Shriners Hospital for Children
3551 N. Broad St.
Philadelphia, PA 19140
Phone: (800) 281-4050 Ext: 4073
Contact: Debbie Armstrong, ACM-RN, BSN, ONC
Website: https://www.shrinershospitalsforchildren.org/philadelphia
Osteogenesis Imperfecta Clinic
Hospital of the University Pennsylvania
3400 Spruce St.
Philadelphia, PA 19104
Phone: (215) 662-4740
Contact: Staci Kallish, DO
Website: https://www.pennmedicine.org
Osteogenesis Imperfecta Clinic
Children’s Hospital of Philadelphia
34th & Civic Center Blvd
11 Northwest Tower, Suite 30
Philadelphia, PA 19104
Phone: (215) 590-3174
Contact: Michael A. Levine, MD, FAAP, FACP
Website: https://www.chop.edu/centers-programs/center-bone-health
Osteogenesis Imperfecta Clinic
Shriners Hospital for Skeletal Dysplasia Clinic Children
3101 S.W. Sam Jackson Park Rd.
Portland, OR 97239
Phone: (503) 221-3422
Contacts: Dennis Roy, MD and Lindsey Nicol, MD
Website: https://www.shrinershospitalsforchildren.org/portland
Osteogenesis Imperfecta Clinic
Randall Children’s Hospital Pediatric Genetics at Legacy Emanuel Program
2801 N. Gantenbein Ave.
Portland, OR 97227
Phone: (503) 413-4505
Contact: George Anadiotis, DO
Website: http://www.legacyhealth.org
Osteogenesis Imperfecta Clinic
Oregon Health & Science University
3181 S.W Sam Jackson Park Rd.
Mail Code: CR113
Portland, OR 97239-3098
Pediatrics: (503) 346-0640
Adults: (503) 494-3273
Contact: Chaim Vanek, MD
Website: https://www.ohsu.edu/xd/
Osteogenesis Imperfecta Clinic
University of Oklahoma Hospital
1200 N. Children’s Ave
Suite 4500
Oklahoma City, OK 73014
Phone: (405) 271-6764
Contact: Sowmaya Krishana, MD, FAAP, CCD
Website: https://www.oumedicine.com
Osteogenesis Imperfecta Clinic
Nationwide Children’s Hospital
700 Children’s Dr.
Columbus, OH 43205
Phone: (614) 722-4363
Contact: John Mahan, MD
Website: https://www.nationwidechildrens.org/specialties/nephrology
Osteogenesis Imperfecta Clinic
Cincinnati Children’s Medical Center
3333 Burnet Ave. ML 4006
Cincinnati, OH 45229
Phone: (513) 636-4760 Ext: 1
Contact: Howard Saal, MD
Website: https://www.cincinnatichildrens.org
ARRE Foundation
P.O. Box 4662
Portland, ME 04112
Email: info@arrefoundation.org
Website: https://www.arrefoundation.org
Facebook: https://www.facebook.com/arrefoundation/
Bohring-Opitz Syndrome
Website: https://bohring-opitz.org/
Facebook: https://www.facebook.com/BohringOpitz/
Children’s Craniofacial Association
13140 Coit Road
Suite 517
Dallas, TX 75240
Phone: (800) 535-3643
Email: contactCCA@ccakids.com
Website: https://ccakids.org/
CdLS Awareness
Website: https://www.cdlsawareness.org/
Email: mikayla.cdlsawareness@gmail.com
Facebook: https://www.facebook.com/CdLSawareness/
Instagram: https://www.instagram.com/cdls.awareness/
Osteogenesis Imperfecta Clinic
Akron Children’s Hospital
One Perkins Square
Akron, OH 44308
Phone: (330) 543-0735
Contacts: Frank Artinian II, MD and William Schrader, MD
Website: https://www.akronchildrens.org/
Osteogenesis Imperfecta Clinic
Carolinas Medical Center
1000 Blythe Blvd.
P.O. Box 32861
Charlotte, NC 28232-2861
Phone: (704) 381-8802
Contact: Charles P. McKay, MD
Website: https://atriumhealth.org/medical-services/childrens-services
Osteogenesis Imperfecta Clinic
The Laurence D. and Lori Weider Fink Children’s Ambulatory Care Center
160 East 32nd street, L3 Medical
New York, NY 10016
Contacts: Jason Klein, MD and Emily Breidbart, MD
Website: https://nyulangone.org/conditions/osteogenesis-imperfecta-in-children
Osteogenesis Imperfect Clinic
Hospital for Special Surgery
535 E. 70th St.
New York, NY 10021
Phone: (212) 606-1631 or (212) 774-7332
Contacts: Daniel Green, MD and Cathleen Raggio, MD
Website: https://www.hss.edu/skeletal-dysplasias.asp
Osteogenesis Imperfecta Clinic
New Mexico Clinic Research & Osteoporosis Center
300 Oak St. NE
Albuquerque, NM 87106
Phone: (505) 855-5525
Contact: E. Michael Lewiecki, MD
Website: https://www.nmbonecare.com/
Osteogenesis Imperfecta Clinic
Children’s Hospital & Medical Center
8200 Dodge St.
Omaha, NE 68114-4113
Phone: (402) 955-4199
Contact: Maegen Wallace, MD
Website: https://www.childrensomaha.org/