Resources Results
DHREAMS
Website: http://www.cdhgenetics.com/
CHERUBS
Website: http://www.cherubs-cdh.org/
Inova Children’s Hospital Craniofacial Program – CPT, CFT
3300 Gallows Road
Falls Church, VA 22042-3307
Team Phone: (703) 776-6920
Contact: Lora Hindenburg
Email: lora.hindenburg@inova.org
Website: http://www.inova.org
Vermont State Cleft Palate/Craniofacial Center – CPT
Vermont Department of Health – Children with Special Health Needs
108 Cherry Street
Burlington, VT 05401-4295
Phone: (800) 660-4427
Contact: Susannah Offenhartz
Email: susannah.offenhartz@vermont.gov
Website: http://healthvermont.gov/family/cshn/cf/cleft_palate.aspx
Craniofacial Foundation of Utah – CPT, CFT
5089 South 900 East
Suite 100
Salt Lake City, UT 84117-5731
Phone: (801) 743-0700
Contact: Mary Lawrence
Email: info@cranioutah.com
Website: http://www.cranioutah.com
The Arc
Website: http://www.thearc.org/
Development Disabilities Resource Center
Website: https://ddrcco.com/
Foundation for Developmental Disabilites
Website: http://www.foundationfordd.org/
American Association on Intellectual and Developmental Disabilites
Website: https://aaidd.org/
Support Groups
Children’s Hospital of San Antonio Craniofacial Center – CPT, CFT
333 North Santa Rosa Street
Suite F1663
San Antonio, TX 78207-3108
Phone: (210) 704-2516
Contact: Kelly Nettles
Email: kelly.nettles@christushealth.org
Website: http://www.chofsa.org
Dubowitz syndrome
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/dubowitz-syndrome/
Texas Cleft-Craniofacial Team – CPT, CFT
UTHealth – Department of Pediatric Surgery
6410 Fannin Street
Suite 950
Houston, TX 77030-5204
Contact: Irene L. Doringo
Email: Irene.L.Doringo@uth.tmc.edu
Website: https://med.uth.edu/txcleft
Support Groups for Dubowitz syndrome
Facebook:
Dubowitz Syndrome Network
Texas Children’s Hospital Craniofacial/Craniosynostosis Team – CFT
6701 Fannin Street
Suite 610
Houston, TX 77030-2609
Phone: (832) 822-3180
Contact: Kimberly McGinley
Email: kmmcginl@texaschildrens.org
Website: http://www.texaschildrens.org/departments/craniofacial-clinic
Hands & Voices
Website: http://www.handsandvoices.org/
Deaf Websites
Website: http://www.deafwebsites.com/
American Society for Deaf Children
Website: http://deafchildren.org/
National Association of the Deaf
Website: https://www.nad.org/
Support Groups
Cleft Lip and Palate Team – CPT
Texas Children’s Hospital
6701 Fannin Street
Suite 610
Houston, TX 77030-2609
Phone: (832) 822-0682
Contact: Julie Edwards
Email: jkcoin1@texaschildrens.org
Website: http://texaschildrens.org/departments/cleft-lip-and-palate-clinic
Dandy Walker syndrome
National Organization for Rare Disorders: https://rarediseases.org/rare-diseases/dandy-walker-malformation/
Dandy-Walker Alliance: http://dandy-walker.org/
Support Groups For Dandy Walker syndrome
Children’s Craniofacial and Reconstructive Plastic Surgery Center – CPT, CFT
1301 Barbara Jordan Blvd
Suite 301
Austin, TX 78723-3078
Phone: (512) 324-0918
Contact: Mary Breen
Email: mbreen@seton.org
Website: http://www.dellchildrens.net