I will never forget that visit on May 18, 2017. I was 20 weeks pregnant and we were going to have our anatomy ultrasound. During the ultrasound, everything was looking great, we had a beautiful healthy baby boy! We were so thrilled. She then told us she had to go get a doctor so we could discuss the ultrasound. That was kinda weird, but we really weren’t worried. Then she came in and told us our baby didn’t have anything below his right elbow and his left arm only had 1 bone in the forearm, when it should have 2. I wasn’t really upset, I didn’t even cry. I really just felt guilty, like it was my fault. What did I do wrong? God gave me so much strength, and told me my baby is going to be ok. So I just turned it over to Him. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
While I was pregnant, my spouse and I kept going back and forth with names. We just couldn’t agree on anything. His middle name must be a “Z” name. My spouse said, let’s name him ZEE! I loved it! Now, what should his first name be?? I searched and the name Gabriel just kept standing out. I looked up the meaning “God is my strength”. So it was settled! Gabriel Zee, expected due date October 14, 2017. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
I went to the doctor on September 19, it had been about a month since our last growth ultrasound and he had only gained 4 ounces! So the doctor decided to go ahead and schedule for induction to be September 20. I was so scared now. I had to keep praying, I didn’t want to give my baby any unneeded stress. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
He came on September 21, 2017. I was so relieved! He was here, he was breathing, he was crying! Later that day about 7 pm, the NICU pediatrician came and told me that they suspected Cornelia deLange Syndrome. I was so scared, but I just turned to God and He has helped us through it then, and still helping us today. Baby Zee is now 6 months old, and he is not letting any syndrome or limb difference slow him down!
Zee
