Hadley Larsen is 6 She was born on Nov. 15, 2012.  Hadley was diagnosed with a rare genetic disorder called Osteogenesis Imperfecta, or brittle bone disease.  Osteogenesis Imperfect or OI is caused by a lack of collagen produced by the bone which in turn causes the bones to be extremely brittle and fragile.  This can produce many problems for the individual, and not only in the bones, but in any area of the body that requires collagen.  Fracturing is very common.  In many cases without treatment and surgery the individual will never be able to walk.  Depending on the severity of the form it can even cause death.  Hadley has had 92 fractures that we know of and it is certain that she will have more in the future.Hadley has also had 15 different major surgeries to have varying types of rods, including telescoping rods, placed inside her femur and tibia bones.

It is often said of children with OI that they have breakable bones but an unbreakable spirit.  This is how we feel about Hadley.  She is an amazing example of resiliency and toughness.  She is constantly trying to push herself to do more and more.  The very fact that she is able to walk is a miracle to us.  Without the help of Family, friends, and amazing doctors her life quality would be sadly reduced.  We are proud of Hadley and the direction she is going.  We know she will be successful in the things she does because of her unbreakable spirt!

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