Our sweet daughter was born two months premature with a genetic condition called Cri Du Chat Syndrome. She is missing part of the short arm of her fifth chromosome. We spent 122 days in three different NICUs and have been readmitted multiple times. Despite all of the health challenges Shiloh faces, she is the happiest and most content baby I have ever known. She amazes us with her resilience.
Our full NICU story can be found here: https://www.lovewhatmatters.com/cri-du-chat-syndrome-genetic-preemie-nicu/