5 months after she was born we got a diagnosis..Noonans. We had no idea what Noonans was and we had to deal with a baby who not only had to be connected to a ventilator but was also suffering with a genetic condition. I cried and didn’t want to accept reality until she was discharged at 7months.
What is hard is not knowing how she will develop, when she’ll remove the trachy and how much extra help she’ll need. Because Noonans varies from person to person no one can predict how she will develop.
Inspite of all of this Lua has shown me what is it to fight to stay alive. She is my definition of strong and I absolutely adore her!