Maeve was born at 35 weeks gestation after an ultrasound just days earlier picked up a brain anomoly. At 2 days old, she was diagnosed with lissencephaly, and Miller-Dieker Syndrome was confirmed following genetic testing. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀
After 3 weeks in NICU we took Maeve home, scared and confused about what the future held for our family. The early days were incredibly hard, as we came to terms with our precious child’s shortened life expectancy, and predicted serious health issues and delays. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀
At the beginning of our journey, other families were our biggest support. We were overwhelmed by the kindness shown by others on the same path. Seeing their joy and love gave us hope for the future. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀
While we have faced numerous challenges in Maeve’s life so far, we have also learnt the true meaning of joy and unconditional love. Maeve has given us so much happiness, and she has inspired countless acts of kindness and service. We are so grateful for our rare girl and all she has added to our life!
Maeve
