Kynleigh she was born full term. At 8 days old she passed out in my arms and was pronounced dead upon arrival at the hospital. I begged for them to do something, so a nurse took a second look and found a very weak pulse. ⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
She was immediately flight lifted to Primary Children’s where they found a tear in her esphopgal lining (esphopgal Artesia) that was causing Kynleigh not to be able to eat. Because of this, she got severely dehydrated, so they placed a Gtube. She still didn’t improve, so for 5 months she underwent multiple surgeries and tests.⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
She is 100% g-tube dependent and mentally/ physically delayed. She has a couple diagnoses but nothing solid. She is undergoing genetic testing in March.
Kynleigh
