“Hatty was born at 38+6 weeks being induced after no movement…she was taken away to intensive care after 12 hours as she started to seizure and would not feed…. She spent 3 weeks in NICU in this time they notice certain characteristics that were unusual, she then underwent full genetic testing. The first set came back clear so they did more in depth testing. At 2 weeks old she was diagnosed as having Prader-Willi syndrome a deletion on chromosome 15, we were devastated….
Fast forward 16 months we have the most incredible girl who brings so much joy to our lives… I wish I could go back and take back all the tears and tell myself that its going to be fine she awesome and our little warrior….we have our challenges ahead but boy are we going to kick PWS butt!”