We found out about Charley having Trisomy 18 early on. We were given the usual 2 options. It wasn’t a choice. If she wasn’t going to make it was God’s decision. A C-section was scheduled. Charley decided to come 3 days early. She didn’t need any assistance. We came home within the normal time frame. They knew she had a heart defect commonly found in T21 babies. The pediatric cardiologist at children’s hospital told us it was an easy fix. He said they would not fix hers and that she would die from it. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
God gave us 3 months & 3 days with her perfect little self. I will forever thank God for letting us know her and have memories. This was 6 years ago. It warms my heart to see how much medical support these babies are getting now. (Charley wasn’t given oxygen or a feeding tube. We were just sent home). We know how much of a miracle she was. She made it to 6 lbs all on her own. ☺️. I have to say the pain isn’t really any better now. Losing a child is unlike any other loss.
Charley
