Potocki-Shaffer syndrome: Latest Post

Sarah: Potocki- Shaffer Syndrome

Sarah: Potocki- Shaffer Syndrome

Potocki-Shaffer syndrome is an extremely rare genetic disorder.  So rare in fact that only a handful of people have been diagnosed with it.  Betty, a sweet four year old, is one of those people. Her mom Sarah shared what life has been like so far caring for Betty and the challenges and joys of having her in her life. Children are More Than a...

Potocki-Shaffer syndrome

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