Resources Results
National Organization for Rare Disorders
55 Kenosia Avenue
Danbury, CT 06810
Phone: (203) 744-0100
Website: https://rarediseases.org/rare-diseases/bardet-biedl-syndrome/
Foundation Fighting Blindness
7168 Columbia Gateway Drive, Suite 100
Columbia, MD 21046
Phone: (800) 683-5555
Email: info@FightBlindness.org
Website: https://www.blindness.org/
ACCEL Arizona Centers for Comprehensive Education and Life Skills
10251 N 35th Ave.
Phoenix, AZ 85051
*Other locations in Phoenix, Mesa, and Tempe
see website for more details
Phone: (602) 995-7366
Email: info@accel.org
Website: https://www.accel.org/
Girl Power 2 Cure
1417 Sadler Road #122
Fernandina Beach, FL 32034
Phone: (904) 277-2628
Contact Person: Kevin Pierce
Email: kevin@gp2c.org
Website: https://www.girlpower2cure.org/
March of Dimes
March of Dimes National Office
1550 Crystal Dr, Suite 1300
Arlington, VA 22202
Phone: (888) 663-4637
Website: https://www.marchofdimes.org/index.aspx
The Carter Centers for Brain Research
Texas Scottish Rite Hospital for Children
2222 Welborn Street
Dallas, Texas 75219
Contacts: Debbie Baldwin for information about The Carter Centers and Dr. Nancy Clegg for clinical questions
Debbie Phone: (214) 559-7614
Nancy Phone: (214) 559-8411
Debbie Email: Debbie.Baldwin@tsrh.org
Nancy Email: Nancy.Clegg@tsrh.org
Website: http://www.hperesearch.org/index.html
The Halo for Children with Dwarfism
Website: http://www.pixelscapes.com/halo/
Nemours Children’s Health System
111 S. 11th St.
Philadelphia, PA 19107
Phone: (215) 995-6000
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
1068 W. Baltimore Pike
Media, PA 19063
Phone:( 484) 227-9400
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
140 Nutt Road
Phoenixville, PA 19460
Phone: (610) 983-100
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
255 W. Lancaster Ave.
Paoli, PA 19301
Phone: (484) 565-1000
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
100 E. Lancaster Ave.
Wynnewood, PA 19096
Phone: (484) 476-2000
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
130 S. Bryn Mawr Ave.
Bryn Mawr, PA 19010
Phone: (484) 337-3000
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
509 N. Broad St.
Woodbury, NJ 08096
Phone: (856) 845-0100
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
1505 W. Sherman Ave.
Vineland, NJ 08360
Phone: (800) 770-7547
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
106 Bow St.
Elkton, MD 21921
Phone: (410) 398-4000
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
Southeast Georgia Health System
Brunswick Campus 3025 Shrine Road, Suite 350
Brunswick, GA 31520
Phone: (904) 697-3600
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
13535 Nemours Parkway
Orlando, FL 32827
Phone: (407) 567-4000
Website: https://www.nemours.org/welcome.html
Nemours Children’s Health System
1600 Rockland Road
Wilmington, DE 19803
Phone: 302-651-4000
Website: https://www.nemours.org/welcome.html
Children’s Hospital and Medical Center Omaha
8200 Dodge St.
Omaha, NE 68114
Phone: (402) 955-4199
Website: https://www.childrensomaha.org
Osteogenesis Imperfecta Foundation
804 W. Diamond Ave, Suite 210
Gaithersburg, MD 20878
Phone: (301) 947-0083
Toll Free: (844) 889-7579
Email: bonelink@oif.org
Website: https://oif.org/
Zylofone Studios, Inc.
3020 Route 207
Suite 107
Campbell Hall, NY 10916
Phone: (845) 476-8257
Contact: Maureen Major
Email: maureen@zylofone.org
Website: http://www.zylofone.org
United Supports for Autism
283 Commack Road
Suite 205
Commack, NY 11725
Phone: (516) 848-8551
Contact: Brian Goldberg, Psy.D.
Email: usforautism@gmail.com
Website: http://www.unitedsupportsforautism.com
Theraplay NYC
251 E 77th St. Lower Level
NY, NY 10075
Phone: (212) 288-1450
Contact: Kim Sullivan
Email: kim@Theraplaynyc.com
Website: http://www.Theraplaynyc.com